Wednesday, January 13, 2010

New Cody's Crew Apparel

Our new apparel is now in.. Here is a sample.

Email for size availability.....

Thursday, January 7, 2010

A new year, the same mission.

Let me start by saying “Happy New Years”! From me and mine to you and yours, we hope you have a wonderful and prosperous 2010.

This time of the year has never really meant that much to me. The only real change it ever makes in my life is that I must get use to writing a different year on my checks. This year is different. It is a year that will be filled with focus and determination. A year that will be very important to the success of Cody’s Crew. I don’t have to say it but last year was by far the worst of my life. My family and I lost something so precious to us that we questioned our ability to continue to function. But, through the loss of our wonderful child something good was born. The start of Cody’s Crew is our way to show that Cody lives on. This will be his legacy. It is our goal that someday no mother, father, brother or sister will ever lose their special loved one to the beast.

2010 holds endless hope and anticipation that the message “One child lost to neuroblastoma, is one child too many!” grows into a household phrase. With your help in spreading the word people will come to know about “The Beast”. They will come to know what terrible treatments and pain these little children must endure before having their lives blown out like a newly lit candle. With your help in spreading the word of Cody’s Crew, children like Cody will grow up to become doctors, teachers, presidents, scientists, engineers or mommies and daddies. These children deserve that chance. This world is a lesser place without them having that chance. My wife and I will continue this fight in hopes that someday it will not be needed.

How can you help? Well, there are many ways.

· First of which, you can spread the word. Tell people about Cody and the thousands of children like him.

· Tell people about neuroblastoma and the fact that there is NO CURE.

· Post links to our blog and the Cody’s Crew website on your blog, Facebook or website.

· Encourage friends, family, co-workers, employers and local businesses to donate to Cody’s Crew.

· If you know a celebrity or public personality, ask them if they would help us spread the word. We are still searching that “front person” that people know and recognize that will get the public’s attention.

· If you don’t live near Northern Virginia and can’t attend any of our events you can plan one of your own. A yard sale, a golf tournament, a bake sale or a lemonade and cookie stand. There are many ideas and we would be happy to hear from you if you have something different.

Cody’s Crew is as “grass roots” as it gets. We have no major corporate backing “yet”. We are less than one year old. We are very much like the children we are trying to help. We are young and weak and need love and nurturing to help us grow. Please don’t read this post and think that all is well and we are fine. Please use this New Year as a reason to help. You can do something! I know that you care because you took the time to come read this post. Some of you check my blog religiously. Some of you have followed Cody’s journey for years. Please, don’t just stand by. We need your help for Cody’s Crew to grow into all it can be.

This picture was taken in September of 2008. The 3 beautiful children in the picture are from left to right are Jenna Mussolini, Owen Lea and our man Cody Johnson. It was Owen's 7th birthday that was being celebrated at Memorial Sloan Kettering in New York. Like most of these children Owen had to celebrate his big day in between treatments. They loved every chance they could get to just be kids. Look at their happy faces..

Now for the reality behind this picture. All 3 of these children are now angels. Jenna passed away just 4 months after this picture was taken. Owen passed away this past summer. Our Cody passed away in March. This is not just a coincidence, it is reality for the kids with neuroblastoma.

This reality for parents like us!

Saturday, January 2, 2010

Happy New Year!

Hello everyone and Happy New Year. Although we are very glad 2009 is over it is also with great sadness we have to start a new year without our Cody. As expected the Holiday’s have been hard. We did not put up any outdoor lights and only had a Christmas tree with sparse decorations. Our hearts just weren’t in it. Abby told us she would understand if we did not want to put a tree up at all and that it would be okay. Justin and Abby are at an age where they are suspect of Santa so much of the excitement and anticipation of the season was missing. Santa, however, was Cody’s favorite magical friend and the one holiday he loved most. Even back in February he was seeing toy commercials and saying to us ‘Look, Look, I want that for Christmas’! It was very hard picking out presents for Justin who always put toys on his list that he and Cody could play with together.

We decided to pick out a new ornament every year that Cody would like and hang it on the tree. This year it was a tree frog. We also decided to put letters in Cody’s stocking to let him know what has happened during the time he’s been away. Abby wrote this nice letter:

Dear Cody,

We have done lots of things without you. It has been so sad here without you. The whole entire school knows that you died. We did not go to school for the rest of the week. At school that day, I wrote a letter hoping that it would get to you. I printed it and gave it to mommy. I went home early because I started to cry A LOT. After you died, we got Zack back from Ginny. We wish you could of saw your cousins too. They all came to your viewing and funeral. It was really, really sad. We had a ceremony for you and now there is a rock dressed up like a pirate and it is in the butterfly garden. But, we also have one rock at home outside by our garden in front of the angle. Then I went to play with Beth. We were both sad after that so then we had a sleepover. I forgot what we did, but I knew it was very fun. We had Cody’s Crew meetings too. We did not go on vacation without you but one day we went to Kings Dominion. We all could tell you wanted to go with us. Chris has not come over a lot now. We planned a walk for you at the Cody’s Crew meetings. I had a tot trot, one mile, and a 5k which stands for 3 miles. There were Nathon’s Ice Cream there too. Chris and his friend Patrick dressed up like a pirate and the little kids got to chase them at the tot trot. We wish you could have been with us on your 7th birthday. I do not know if you got the gormities that we sent up on balloons and we wrote a note with it too.

With Love,

Although time has eased the ‘raw pain’ of our loss the pain will always be there. It is a world we hope none of you ever find yourselves in. We truly hope you are enjoying the chaos of the season and wish you all good health and happiness in the New Year. We consider you all dear friends and thank you for checking in on us.