They are home....

Diane and Cody are home. After having his blood checked again and getting a checkup they let him come home. Actually a couple of his liver numbers have come down from yesterday. I have to tell you, I feel so much better. But his liver is very inflamed right now. I just don't feel like he is out of the woods yet. This is just something he does not need right now..

Right now he is running around the house and being Cody... I feel a little better but I will really feel good after Tuesday and hearing that everything is OK.

Heading into Georgetown...

Diane just called me. She is taking Cody in because he is complaining of a tummy ache. She says she can really notice the yellow. This really has me worried now. Oh I pray to God that it's nothing...

I will update as soon as I hear something...

A long, long day.....

Cody and I headed into Georgetown this morning after we saw the other two off on the school bus. Diane seemed to contract the same thing that the rest of us have had over the past couple weeks. She came home ill yesterday after work but seems to be feeling better this evening.

So we sat in bumper to bumper traffic for about 90 minutes while heading in. Funny what a little rain will do. When we got to the clinic they accessed Cody's port and drew blood for the HAMA test. After they drew the blood the young intern doctor came in to check Cody out. She did the normal stuff and Cody cooperated with her very well. When he isn't spending all of his time in the hospital he actually is very easy going. When she finished we headed back out of the room so Cody could play with the other children and Jenny. It wasn't long he had to go back in. Dr. Gonzales was doing clinic so he had to go in and let her do the same things the intern did. After finishing she looked at me and mentioned that she was concernded about Cody's eyes. She said they looked a little yellow. She then wanted to draw more blood for other tests. This was not real popular because they had already de-accessed his port. So after getting more blood and sending it out Dr. Gonzales came in and filled me in on her concerns. She said that the yellowing in the eyes was a sign that he is having problems with his liver. The blood test confirmed this so she sent us down for an ultra sound. This was the point that I was kinda glad that Diane was feeling under the weather. She would normally have called me about 5 times by now and if she knew the blood numbers before we got results from the ultra sound she would be worrying to death. So after the tests the Dr. was felling much better. She told me that the liver numbers might have been caused by a viral infection. He is much more vulnerable than you or I when it comes to the bugs that are out and about this time of year. So they drew another batch of blood to do more tests and scheduled him to come in next week.

You can see how our temporary relaxed state can be thrown into a tailspin in a single moment. I'm bushed....

I'm still here.....

Sorry for slacking on posting...

When we are home it is a little a hard to find as many things to write about. OK, let's see, I think I mentioned that Justin and Daniela were sick while in New York. Well I seemed to get something similar on Thursday and spent most of the night praying to the porcelain god. Although I didn't stay sick it took me a few days before I started to feel right. The bad thing is Cody seemed to get the same thing on Friday. He was back to his old self by Saturday.

I will be taking him in for his monthly tune-up and have his blood taken and sent to MSK for the HAMA test. We will be praying for NO HAMA!

Here is some great 3f8 info for you to read.

My brother Alan has just got out of the hospital. He just had his second back surgery and now is made of screws and pins.. I wish you a speedy recovery Alan. Love Ya!


Here are some of the pictures from Time Square that I promised.

















I really don't know what to say on this one...



I think I know what I'm going to get them for Christmas...



How about a little Ricky Ricardo?









I'll try to write soon...

Thanks for reading...

Good Morning Everyone....

Sorry it's been a few days since I have updated. That is because there is not much to update. We get home on Saturday evening after a very long ride home from NY. Traffic was UNREAL! I don't know if we will try that again...

Cody will go in next week for his monthly breathing treatment and his HAMA blood test. As I stated before, if he is HAMA positive he will most likely have to get some type of chemo to knock his system down again. That will bring the HAMA number down so he can continue this treatment. They are working on a vaccine for neuroblastoma but nothing is ready yet. 3f8 buys us time, that is the bottom line.

I have a few nice pictures from Time Square that I have to upload. I'll try to do that soon.

Right now we are doing our best to prepare for Christmas and keep this train rolling. Like most people right now, juggling finances is one of our main worries. Things are tight but we will get through it. Thank God, the oil prices have fallen!

Thanks for reading....