Had pain today....

Cody did have pain today and had to get one rescue. We did get some information that we didn't know before today. Cody's HAMA numbers before this cycle were up in the 700's. The 800's are considered HAMA positive. So chances are very good that Cody will be HAMA positive on the next test. This means he will probably have to get some chemo to bring his HAMA numbers back down.

Nice Day...

Here are a couple of pictures we took today. I hope you enjoy them

Attack of the giant Ronald!!!!

Here is Cody checking out Sponge Bob..

You want me to build you a fire with what?

A little family picture.

Best friends...

Happy Thanksgiving...

The Johnson family has alot to be thankful for, how about you?

We are all together here in New York. We will be heading down to a private viewing of the Macy's Day Parade. We will be in an office building that has a great view and will be serving breakfast for us. Later the are having a feast at the RMH. Last night we rode the Police bus down to where they have all the balloons ready to go for today's parade. The public was aloud down one side of the street and they had the other side blocked off. It was used as a private viewing area. It was crowded but not nearly as bad as the public side of the street. They really make the kids feel special when we are here in New York. The Ronald McDonald House staff and volunteers are great.

Yesterday Cody had no pain again. We will go in Friday for the last treatment of this cycle and then head home Saturday. He will have his blood drawn for the HAMA test in two weeks. We hope and pray it is not positive. You never know.

Thanks for reading and don't eat too much Turkey..... :)

Week 2 - Day 2

No pain.... No rescues.......

Not a good thing... We will wait and see what the rest of the week holds for us.

Pray for no HAMA please....

Late/Early Post

Sorry for not getting this up yesterday. Cody had commandeered my laptop to play Webkinz. Yesterday was good and kinda bad. Good in the sense that it was the easiest day Cody has had while on 3f8. It was kinda bad because other than a slightly elevated heart rate at times Cody seemed to have very little pain. By now you all know what that could mean. They did use Morphine on him yesterday instead of Dilaudid. Dilaudid is supposed to be many times stronger than Morphine and fewer side effects like itching. He seemed to do much better but that was with no rescues. It is very hard to try and control his pain and at the same time try and minimize his rage and anger issues. We shall see today.

Thanks for reading..