September, 11 2002…..
Cody entered this world as a miracle – our unexpected baby that was not supposed to be had fought his way into this world. Our lives would never be the same.
Cody spent his entire life fighting for just that, his life. Cody was our healthiest baby although he was hard to make happy. In many family photos he is crying. As we looked back at these pictures some time later we realized he was in pain. The beast had been taking over his little body. Three days before his second birthday he started a journey that no child should have to endure. After spending a painful week with fevers and leg pains he was admitted to
Cody went through a very aggressive treatment over the next year. Most of his time was spent inpatient. Cody endured many intense rounds of chemotherapy, radiation, surgery and stem cell transplant. With the treatments came complications, We almost lost Cody in the spring of ’05 due to a toxicity from transplant but our Cody once again with his fighting spirit pulled through. He learned to talk while in the hospital. Some of his first words such as ‘milky’ referred to the medicines that hung by his bedside. All of the
After several months of kindergarten he became ill with a stomach ache that would not go away. He had almost made it two years with no evidence of disease but it turned out the beast was back. It seemed as though every time Cody started to live like any other little boy the cancer would rear its ugly head again putting him back in the hospital.
Another chapter had started. The cancer had luckily returned to only one spot but unfortunately to one of the worst – his liver. After several more intensive rounds of Chemo we were sent to NY to one of the best Neuroblastoma surgeons in the
When he wasn’t able to attend school because of treatments he couldn’t wait for Justin and Abby to come home from school. As soon as Justin came through the door he wanted to play ‘guys’ or video games. He and Justin were best buddies. The first words out of Justin’s mouth when he walked in the door each day was “Is Cody home”? Cody wanted to grow up to be 10 just like his brother. Cody loved Sponge Bob and his favorite character was Patrick. He liked to say that he thought Patrick was funny because he was so stupid. He knew the Sponge Bob movie by verse and his favorite color was blue. He often said he wanted to marry mommy and Lori when he grew up. He loved for mommy to tickle him and to play pirate games with daddy. He also wanted to be a wrestler when he grew up. Cody loved his cousin Chris who has been by his side since he was born. When Chris was around everyone else was chopped liver. He and Chris spent endless hours playing video games and monopoly or listening to his MP3 player. He liked to call Chris on the phone and listen to the recording. If Chris answered Cody would laugh and hang up on him. This game would sometimes last for hours. Cody loved his old dog Bear who passed away this past summer. Cody often dreamt about playing with Bear. He told us he couldn’t wait until we were all together again in heaven playing with Bear. Cody was compassionate, even after finishing the terribly painful treatments in
Those hospital trips scheduled or not trumped any other plans made in our lives. But there was one constant, not once, not one time did Cody complain about having to go into the hospital. He made it bearable for us to get through these past 4 ½ years. He was our rock, our inspiration.
The last several months have been the absolute worst. Cody rapidly deteriorated and stopped talking about fighting the bug. He was suffering great pain and pulling away from the ones he loved. Although his body was beaten down his spirit remained. He fought to do things for himself until his last hours. He was a true champion.
Through Cody thousands have been made aware of the many children battling this deadly disease. As his parents we will continue his fight against Neuroblastoma in the hope that no other parent will have to face this immeasurable loss.
We would like to thank all of our family and friends who have traveled this journey with us. Without each and every one of you we could not have done it alone. Our special love and thanks to Dr. Abu-Ghosh who shares the loss of a boy she considered her own.
Cody was and always will be our little hero. By age 6 he had been through more than most people will in their lifetime. In his short life Cody has touched many. We can only imagine what he would have done with a lifetime. He is truly an inspiration and not a day will go by that we will not miss him.
Captain Cody was a pirate who sailed on a ship with pillow sail. But, he navigated most of our world on a journey full of fierce battles and swashbuckling adventures. At times he was a ruthless looking, sea crusted sailor with a black eye patch and a smoking gun and at others he was a sweet and kind gentleman of fascinating charm.
Like other pirates, Captain Cody had mercilessly plundered in table games leaving multiple social workers, art therapists, nurses, and child life specialist lost in wild waves. He rode horses through enchanted forests, used chutes and ladders to take on fortresses and castles, seized one property after another in monopoly, sank numerous battle ships on endless wars, and conquered space on a Lego spaceship. There was nothing he did not experience or see, always displaying great bravery and courage.
Like the worst of the buccaneers, Captain Cody had seized the ultimate booty and hid it deep in his hospital room. His treasure chest was brimming with chocolate coins, precious jelly beans, candy necklaces, and golden lollipops. Always seeking greater richness, he decided to sell his precious candy one piece at a time. The price depended on the buyer, a decision that only astute business men would take. However, if the buyer looked tempted but too poor to afford the buy, sometimes Captain Cody made exceptions and gave away pieces of treasure for free in an act of great compassion.
Like most of the good looking pirates he took plenty of hostages only with his charm and invited us to navigate the seas. He is known to give a hundred kisses all at once and the warmest hugs. He laughed hard and spoke loud. He played, bargained, and cheated silently. He not only loved the seas but also enjoyed the beach where he gave wings to his pirate dreams.
Cody also had the lifestyle of the pirates; he drank life in one sip, through his adventures he experienced and enjoyed the intensity of living, and nobody or nothing broke his sword or put limits to his adventures. Through his imagination he navigated seas, land, and outer space. He would not like us to be weak; he would like us to continue on living strong with his willpower and imagination as our continuous inspiration.