to post an update... I was very down and discouraged on Friday. In fact I posted something that I turned around and deleted afterwards. One step forward and two steps back. Does that sound familiar? That is the way I felt on Friday. I came home to find Cody sleeping in his bed. Diane had to give him some morphine as I mentioned before. He had been melting down all day and could not control himself. After he woke up, he started all over again. He went for 3 hours straight. I am just about at whits end. I don't know how much more of this stuff I can handle. It is hard enough dealing with his physical health issues but his mental health is a real concern also.
Anyway, things have gotten progressively better since Friday. I put the pool up in the morning on Saturday. I started filling it before Cody got up. We have well water so it is pretty cold. Cody and his sister jumped in the pool when there was just a few inches of water in it and didn't get out until almost dark. We had our neighbors over for a few beers and the kids played in the pool. Cody seemed to be feeling better after the second day post operation. We had trouble getting the bandage off of his wound. It was saturated with blood and was suppose to come off Saturday. Diane was able to get it off before bed but it was bleeding just a bit and looked like it might be getting infected. So, I had to take him into clinic yesterday for the doctor to look at the site. They didn't have any luck getting blood from his hand with the needle. "Thank God for numbing cream." We put cream on his arm and waited for 20 minutes to try again. She got it on the first stick. We then had to remove a part of the old bandage so the doctor could look at it. It came off relatively well but I had to hold him down to do it. He called me many choice words that the nurse didn't expect to hear. She said she thought it did not look that bad and didn't think it was infected. Here is the down side, He can't go in the pool until it heals more. The kid just can't catch a break. I hope he can go in tomorrow or Thursday.
I think he will be starting inpatient chemo starting next week. Once again, he is just starting to feel better and we beat him down again. How can we expect him to think we are doing what is right for him when it always makes him feel so bad. I pray every day that a cure is found soon. These kids deserve better...
Here are some good pictures from today.
I came home from work and was getting ready to do 5 miles. Cody said he wanted to run also. So, here he is kicking my butt...
I hope this picture isn't too graphic for any of you. This is the tube that Cody had removed on Thursday. You can also see the scar from his liver surgery. This is the reality of a child living with cancer. I guess if this picture doesn't bring out some kind of feelings then you are stronger than most..
Now on a lighter side. These are a few of my nature pictures for the week.