Tuesday, July 15, 2008

I guess it's time.....

to post an update... I was very down and discouraged on Friday. In fact I posted something that I turned around and deleted afterwards. One step forward and two steps back. Does that sound familiar? That is the way I felt on Friday. I came home to find Cody sleeping in his bed. Diane had to give him some morphine as I mentioned before. He had been melting down all day and could not control himself. After he woke up, he started all over again. He went for 3 hours straight. I am just about at whits end. I don't know how much more of this stuff I can handle. It is hard enough dealing with his physical health issues but his mental health is a real concern also.

Anyway, things have gotten progressively better since Friday. I put the pool up in the morning on Saturday. I started filling it before Cody got up. We have well water so it is pretty cold. Cody and his sister jumped in the pool when there was just a few inches of water in it and didn't get out until almost dark. We had our neighbors over for a few beers and the kids played in the pool. Cody seemed to be feeling better after the second day post operation. We had trouble getting the bandage off of his wound. It was saturated with blood and was suppose to come off Saturday. Diane was able to get it off before bed but it was bleeding just a bit and looked like it might be getting infected. So, I had to take him into clinic yesterday for the doctor to look at the site. They didn't have any luck getting blood from his hand with the needle. "Thank God for numbing cream." We put cream on his arm and waited for 20 minutes to try again. She got it on the first stick. We then had to remove a part of the old bandage so the doctor could look at it. It came off relatively well but I had to hold him down to do it. He called me many choice words that the nurse didn't expect to hear. She said she thought it did not look that bad and didn't think it was infected. Here is the down side, He can't go in the pool until it heals more. The kid just can't catch a break. I hope he can go in tomorrow or Thursday.

I think he will be starting inpatient chemo starting next week. Once again, he is just starting to feel better and we beat him down again. How can we expect him to think we are doing what is right for him when it always makes him feel so bad. I pray every day that a cure is found soon. These kids deserve better...

Here are some good pictures from today.





I came home from work and was getting ready to do 5 miles. Cody said he wanted to run also. So, here he is kicking my butt...



I hope this picture isn't too graphic for any of you. This is the tube that Cody had removed on Thursday. You can also see the scar from his liver surgery. This is the reality of a child living with cancer. I guess if this picture doesn't bring out some kind of feelings then you are stronger than most..








Now on a lighter side. These are a few of my nature pictures for the week.

11 comments:

Gettin Older said...

Sorry for for the rough ride. I wish there was something I could do to make it better. At least you are able to take the forward steps, and it is two steps forward and one back. You are making progress even thought the progress is slow. Cody has a rough road, But I don't think he could have any better parents to help him through. Y'all are doing great

BIG MO said...

Just a few lines for now and then I'm going over to see Jr for a few minutes. I don't stay very long because that place is too depressing for for me.Anyhow you
said something that I have thought about often.How much more of this
can you and Diane handle?????? As
I said before,what is going on in the BIG GUY"S mind?I'll write later.
LOVE TO YOU ALL,
MOM

Anonymous said...

I will run my long run tomorrow for Cody. I won't look as cute doing it though...!
Staying out of the pool with the port until it is completely healed is wise. Hard on Cody, but the right thing to do. Maybe a few days of jogging a bit with Dad !!
Prayers and positive thoughts continue. You are strong and amazing! G2G

TiredMamaRunning said...

All very honest photos-it warmed my heart to see Cody running out there with you. :) I'll be running my "tough" midweek run with him on my mind.

Trish said...

Mickey this blog serves so many purposes - you shouldn't apologize for your feelings and frustrations they are legitimate and real. We are so fortunate that you give us this opportunity to follow you through this journey. It makes us feel like we are doing something to help and support you and your family. Thank you for educating us, I had no experience with this particular form of cancer and because of your blog I will put money and time towards finding a cure. You have no choice but to continue on this road with your family - we are all behind you wishing we could do more.

Dottie O said...

Bless his heart....

I love those running pics with his shoes strapped so tightly.

Sending prayers and strength,

Anonymous said...

Mickey - Trish says, everything we all feel for you all. I feel your blog is very healthy for you and Diane. It helps us as well. We laugh when you laugh and cry when we know you are crying. Know you are not alone, even when you feel you are at times. You and Diane are always on our hearts and minds. The pictures of you & Cody running with are so very real of the love you both have for each other. That's what give you, your well to keep fighting for your little guy. Thanks for sharing them with us. Loving and praying for you all! - Pam

Trish - thanks for sharing all of our thoughs! :)

ElizabethNYC said...

Mickey, I wish there was more I could say to help. You're all on a long tough journey, but you're taking your steps with love for Cody in mind. That's got to be the best way to go.

Prayers continue for you, Diane, Cody, Justin and Daniela...

Anonymous said...

the running pics are really cool - to see him out there kicking it...you're doing it for him and hanging in there with him...we're praying for you-all.
mark stacy & coilean

Anonymous said...

Hey Mickey,
Everyone has said it all. I just want you to know that we are here for you all and are inspired by your love. Hang in and Hold on!
BigSis

Anonymous said...

not sure how I missed this post the other day. Mickey, I know it doesn't always seem like it but I know that you and Diane are strong enough to handle this. You are doing everything you can, just keep doing that and eventually it has to get better.

We'll keep praying.

Susan and Jonathan