I received an email from one of my connections at BOP. His name is Larry and he is always in close contact with Dr. Cheung at MSK. Here is what Dr. Cheung said to Larry in a very recent email.
Even better news before the July 4th celebration. Our 3F8 supply is remedied and the "troop" is ready again.
Will be in touch.
What I hope this means is we will be getting a schedule on when Cody can start. One thing I do know is that after Cody recovers from this round of chemo he will have to get a higher dose of chemo right before he starts the anti-bodies. Diane and I both are starting to worry about how much chemo his little body has received. He is going in to clinic again tomorrow with Diane. His platelets were 37,000 yesterday which is very low and he may very well need to get an infusion.
Things are on still on track to get a port on Monday. We will have to take him in for pre-surgery blood work on Sunday.
Update: things are already changing. Due to Cody platelet level Dr. Abu-Gosh has pushed the port procedure to Thursday to try and get his platelets at a better level.
I would like to thank all our loyal readers. I know you come here to follow this difficult journey that Cody calls life. Diane and I really appreciate your prayers and well wishes.
God Bless all of you!