Well with every up there is a down, or two... Cody has been in pain today and Diane said he was a bear. When they put in a port they install it under the skin. That in itself has got to be very painful. We have been giving him Tylenol and Diane actually gave him morphine.
When Diane came home yesterday she told me that there is going to be a change in plans for the summer. You know that Cody has been waiting for the beach trip which is suppose to be next month in Ocean City. Well we have been given his treatment schedule and it is not vacation friendly to say the least. In about 10 days he will be getting his HARD chemo to get him ready for the antibody treatment. Being that he is having a harder and harder time recovering from even the easier chemo he will have to be given some of his stem cells that are frozen from the last time they harvested them from him. His Dr. also said that he will stay in the hospital until he totally recovers from the chemo. This will probably be 2 weeks at least. We are then going to have to go up to NY to start his treatments up there. We will most assuredly miss the beach house week. The beach house was a special donation for cancer patients. I don't know what we are going to do. I guess we will try to not talk about it.
After I finish the wood tomorrow I'm going to set up the kids pool. It is a 2 1/2 foot by 12 foot pool. It will take a couple of days to warm up for sure but it should be ready for them next week sometime. As I said before, he can't seem to catch a break...
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10 comments:
Mickey, I'm so sorry that Cody is so uncomfortable. I've had patients describe the post-op port placement pain as a "dull ache" for about 48 hours, but I'm sure it's harder on a child.
After it heals, at least he'll get to enjoy the pool you are working on!!
As always positive thoughts and prayers continue. G2G
Sorry to hear that the vacation plans are changing - y'all must have been looking forward to that relaxed family time...
But moving forward on the treatments has its own reward - like hopefully kicking cancer's butt from here til the cows come home!! I think I mixed my sayings up there, but you get the drift!
Prayers continue for the whole family!
ElizabethNYC
Like G2G said, the ache from the port does not seem to last. Dad does not even seem to notice his anymore. Sorry about the changes to the vacation plans. Hopefully y'all can work out some sort of alternate plan.
I'm so sorry to read that Cody is having so much discomfort from the new port. He probably had no idea about the recovery time and expected to just get up and start doing a little more of what he wants to do.
Maybe we can brainstorm some 'staycation' ideas for his hospital stay.
Dottie
Mickey, I'm sorry Cody's having such a rough time. Continued good thoughts and prayers for Cody and all of you. He's such a tough little guy and I'll continue to have faith that the treatment will kick cancer's butt, even though it's hard on all of you.
-Kazz
Oh Deck I am sorry about your vacation. I wish I could help. Paryers your way still.
Your friend Karen
I am so sorry to hear that Cody is in pain from operation. Hopefully it will go away soon and he won't even notice it. Sorry to hear about the vacation plans but Elizabeth is right the treatments will hopefully lead to many more happy vacations. Continued prayers!
Susan and Jonathan
Mickey & Diane, Continue to keep Cody and the rest of your family in our prayers. XO - Pam
I'm so sorry he's in pain......I dont' remember Brandon having any where he needed anything stronger than tylenol.......I'm sorry about that.
Maybe you guys can get a trip in when its all crappy & snowy out, to the beach somewhere. Its the best time to go then anyway!!!
He'll love the pool, & so will the whole fam!!!!
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