I just got off the phone with Diane and she gave me the 3rd degree for not calling sooner. My phone was dead when I got back to the RMH. So I hooked it up for a charge and we headed out for pumpkin painting and then to McDonalds for Cody's favorite dinner.
Cody didn't have much pain today but his heart rate went up to about 120. He was a little grumpy but we are not feeling good about this. They drew some blood this morning to do a HAMA test and we will find out tomorrow. We really don't want him to HAMA this quick. We hope that he will make it at least 4 sessions before he HAMAs.
Today he had his PET scan, tomorrow he has his CT scan, Wednesday he has his MRI, Thursday he has MIBG scan and then he has his Bone Marrow on Friday. On top of all that we must juggle not eating or drinking before those tests and not drinking around his 3f8 that he should be getting everyday also. "Can you say WOW?"
Well, that's it. Sorry for waiting to call Diane.... :)
Deck Ape
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About Me
- Deck Ape
- I grew up, ah, got older in Ford City Pa. A small town 45 minutes up the Allegheny River from Pittsburgh. Growing up a true 70's child I really thought that the Steelers were suppose to win the Super Bowl every year. :D Being the free spirit that I am I couldn't wait to get out on my own, so I joined the Navy. I flew out to the Philippines and met my boat the USS John Paul Jones DDG32. From there we sailed back to the states and spent most of the rest of my tour between San Diego and Long Beach. Since getting out I married twice, had 6 children and lived in Groton CT, Pensacola FL, Germantown MD and now in Northern VA. I've been married to my wife Diane for 10 years now and have three energetic and loving children. My life reads like a fiction novel in many ways. Many ups and downs but I feel blessed to have this life. To some it may seem boring but it's all mine.. :D
4 comments:
Hey Bro,
I still don't know how you do it! The love of Cody is how but it must take a toll on everybody. Our hearts and prayers are always with you guys and think about constantly.
Much Love, The Washington Johnsons
Every time I read your blog, I think of that old plate spinning act. I am impressed and amazed at the everybody's resilience. Prayers will continue.
I think your brother said it all
in his comment for all your family
and friends. About the only thing
we can do is keep on praying & leave it in the hands of God & doctors. We are here for you all.
Hope the HAMA test comes out okay.
Will be waiting for your next post.
LOVE, MOM
Here's hoping for good test results across the board this week! Also hoping that amidst the busy schedule, that you have some fun together...
Prayers continue as always,
Elizabeth
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