Thursday, January 8, 2009

Here we go....

Today's MIBG confirmed that all 3 spots are neuroblastoma. The original one is in the bone and the 2 new ones are soft tissue lesions. This really doesn't change the treatment. He will be getting radiation in those areas. It will be 9 days of treatment. Cody's liver is starting to act up again. His numbers are rising and they cannot start chemo until they are normal. The 'liver team' suspects that it is being caused by the beta glucan that was used with the monoclonal antibodies treatment in NY. His liver numbers had almost recovered and now that are going crazy again. They are still working on getting an MRI slot (with sedation) for tomorrow. They would like an MRI specifically looking at the bile ducts in his liver, an MRI of his legs (for the radiologist to get 'cleaner' film for targeting) and an MRI of the Head. I think they want to be sure it is clean as neuroblastoma often relapses to the brain/spinal cord (central nervous system). They are going to try a liver drug on him to try and 'kick start' it. The Doctor just called it in so Diane is going to get it.

So there you have it. Cody is taking it all in stride. He wants to kick the bug's butt. He is ready. As for Diane and me, we will do what it takes.

I will close with this thought. The first time Cody was rid of the beast it was gone for over a year from the last chemo treatment. This time it has been 4 months. Does this tell you something? It tells us that the only chance our son has for survival is that we need a cure for neuroblastoma. This desease does not give up... It becomes harder and harder to stomp it out....

Thank you for reading...

19 comments:

Trish said...

I'm sorry the news wasn't better - and you are right we need a cure. With more than 20,000 hits on this blog you have educated us. Cody can count on me to support BOP I wish there was more I could do.

BIG MO said...

I wish there was something I could
do. If CODY is ready to kick butt
then we will keep on praying for him to do just that.We all wish we
we could help you guys do something that could make a difference.Sending my love to all of you, I'll check back tomorrow.
MOM

Gettin Older said...

If you have a disease whose butt needs kicking, then you have the right team behind you...

praying for a cure...

Anonymous said...

Gosh, Mickey, I don't even have the words to say to help with this pain that y'all are going through. The "masters" are praying hard for Cody & the family! Thanks for taking the time to keep us all posted.

Teresa (tcoplen-RWOL)

Linda said...

There is an amazing spirit and power in Cody. He's determined to fight it and everyone at Georgetown is determined to fight too!! I'll be praying for all of you! STOMP IT OUT!

Mary said...

My heart is breaking right now. I guess if Cody is ready to fight than that is what we will all pray for, for him to keep fighting. I am here if you need us. Anything you both know that. Storming heaven with prayers for Cody and the family.

Samantha said...

I've got my boots on, ready to help Cody kick this thing in the butt.
Prayers sent.

Sam

Dottie O said...

Praying that you all keep the strength needed to keep on fighting.


Dottie

Anonymous said...

Thanks for keeping us posted. Along with the others, prayers that you and the family will be able to handle yet another challenge with the "beast".

Shirley

Anonymous said...

If Cody is ready to fight the you tell him WE have his back! His fight and the prayers from above are going to get him through this again. Be strong!
Prayers of Strength and Healing!
God Bless,
Bruce

Monica Cassier said...

I was hoping for better news, but I know Cody will fight the beast...and you and Diane just need to hang in there, Mick. Remember "Do, or do not: There is no 'try'" (Yoda)...

Anonymous said...

I'm praying hard for Cody and the family as well, Mickey.
-Sante

The Murrant-Johnson's said...

Mickey,
You know Cody and the family are in our thoughts and prayers every minute of the day. I just want you to know that if you ever need someone to talk to, I'm always there for you.

Love you and stay strong,
Your little Bro,

Alan

runnergeel said...

Not good news at all. Prayers are coming faster from me. God bless all of you
Karen

Cap'n Ron said...

Damn! I sure was hoping the news would be better. You are right, we need to focus on finding a cure for this monster! I'll do my little part once again and really wish I could do more.

Lots of love heading straight to your family from the west coast.!

Hang in there buddy!

elizabethnyc said...

Prayers continue from this neck of the woods, each and every day. Mickey and Diane, if there's something more tangible that we can do to help, please let us know!

TiredMamaRunning said...

We've been praying for Cody and your family every single day, and will continue to do so. If Cody's ready to kick butt then that is the least we can do at our end.

Anonymous said...

Lots and lots of hugs are being sent to Cody!!!

Pat (ACCA-NCC)

Anonymous said...

Mickey, sorry to hear that I really wish it was better news. But you know I will be here to help support when needed.

Prayers continued!

Susan and Jonathan