Well Cody just finished his last chemo of this cycle. He is in great spirits. He hasn't mentioned his feeding tube once today. His bilirubin is just about the same as yesterday and there is very little change in the rest of the numbers. He will be getting IVIG (Intravenous immunoglobulin) at 3am and then he will be getting a CTscan of his head and chest around 8am or when they can fit him in. After that we are out of here! :) He then has to come into clinic on Friday.
As suspected the insurance company rejected the Cyber Knife procedure. Dr. Shad said that is the norm. We will appeal and she hopes it will be approved. Isn't it just crazy?
I asked for a little more definded goal as far as the feeding tube goes. Dr. Shad said that the goal is about 5 pounds. We will be hooking him up at night from 8pm to 8am. The hopes is that he will eat during the day and with the night suppliment he can put on some pounds. One of the double edged swords with Cody is that he is very active and gets around very well. The only problem with that is, he burns calories... Just can win right? Well I have to post now because he is demanding that I play a castle fighting game with him. I have yet to win at this game.. LOL