Wednesday, January 28, 2009

One step forward, one step back...

As good as yesterday was today was that bad. It all started about 5:30am when Cody had a real bad reaction to the IVIG they were giving him while he was sleeping. I tried to consolidate the things that needed to be done so we could get home early today. Well, we just got home at 8:00. The reaction that he had to the IVIG was major shivering and then fever. It took him 40 minutes or so to get through it. I felt so bad for him. There was just nothing I could do to stop it. The treatment was suppose to last for 4 hours but they stopped it at 1 hour. He was supposed to go down for a CT scan around 9am but I asked them to wait until he got up on his own. He did around 9:30 and they finally fit him in around 11:30. All and all he had a pretty good day. He was fairly cheerful for the bad night sleep and all. So before we headed down for the scan the resident can in and told me that they wanted to try and finish the IVIG treatment. There were going to slow it down to about 5 hours and they gave him different pre-meds before. He finished and was de-accessed about 7pm.

Now back to the scan. It went very quick and Cody was great. He was very still and we were in and out in 10 minutes. I really didn't think about the results today. I was focused that the IVIG would go without a hitch. As we were sitting in his room playing Wii, Dr. Abu-Gosh came to the door and asked if we could step out of the room to talk. I knew instantly that there was a problem. She gave me that look and told me that she could see 4 or 5 spots on each of Cody's lungs and one large spot around his wind pipe. I felt as though someone just punched me in the stomach. Right now we are going to try and enjoy the weekend and head back into clinic on Tuesday. They will probably start radiation on his throat area in hopes of stopping the advance of the large spot. We have to watch his breathing and pay close attention to his swallowing.

I wish I had better news for you all but I don't....

Thanks for stopping in...

30 comments:

Cameron said...

My heart is heavy. I am not sure what to say other than I will continue with all my mind and all my heart to say prayers for Cody and all of you! God, I wish there was something that I could do. If I could, I would do it in a heartbeat. PRAYERS PRAYERS PRAYERS!

delighted heart said...

I am so sorry you got that report today. Our church tonight prayed for Cody and you and your family. We are standing and believing he is healed. Hang in there.....
Father in Jesus name I ask for your comfort and peace to be with with this precious family. May Cody's next scan come back clear!Amen!
Putting something in the mail tomorrow for Cody......
Psalm 91
Patti

elizabethnyc said...

Mickey, I'm so sorry to hear today's news. Hoping the radiation treatments will stop those new spots in their tracks. Also, forgive my ignorance, what sort of timing is there between chemo treatments and seeing results in scans/numbers/etc.?

Prayers continue as always, my friend, for Cody and your entire family.

hugs to you and Diane...

Samantha said...

I just want to scream, cry and throw something! I'm so very, very sorry for the crummy report.
I've been down this road and I do know how you and your family are feeling.
Adding *jet fueled power boosters* to the prayers for Cody. Give each other lots of hugs and love, live in the moment.

Strength and prayers for you all.

Sam

MangoAK said...

I'm So Sorry.

I don't post often- but have been following this blog from RW. Just want you to know that there are many out there like me you don't know about who are praying for Cody and his family.

Praying for Cody. Wishing you strangth.

Anonymous said...

Oh Dad....I don't even know what to say. I'll pray instead.


XOXOXOXOX

Corie

Dottie O said...

Ugh. I don't know what to say, either. At least Cody is keeping his spirits up.

Enjoy your weekend together and the Big Game on Sunday.

Hugs to all of you!

Dottie

Anonymous said...

Mickey I know that feeling of the punch to the stomach, and I just felt it again reading your post. My heart aches.
I think Corie said it best...I don't know what else to say, so instead I will continue to pray!
God Bless,
Bruce

Anonymous said...

Oh, Mikey and family, I wish I wasn't reading that. My heart just aches for all of you. I hope that you all have a wonderful weekend and that you can find some peace in being together. Hoping of course for better scans soon!

Kate

Anonymous said...

Oh, Mickey my heart just aches for your whole family. I wish that the news were different and I hope that the next scan shows better things. Please enjoy your weekend and I hope you find some joy in being together. Hang in there...we are all thinking of you.

feetdon'tfailmenow (Kate)

Anonymous said...

We'll keep praying for Cody and your family. Keep the faith and stay strong. Cody's got a great family!

MDCN

Anonymous said...

Mickey, like you and Bruce, I know how horrible that punch in the stomach is. My heart aches for your family and Cody. I hope the radiation does its work quickly and that things start looking up. Thinking of you often, though I haven't posted.
judy716

Anonymous said...

Glad that Cody is home - that way he'll be able to be part of the excitement of Sunday and the whole Johnson family cheering for the Steelers to win!!!

Cody, continue your fight - if anyone can make it through yet another rough time - our little fighter can!!

Hugs to Cody, Pat (ACCA-NCC)

Gettin Older said...

Sorry about the news Mickey. I can't imagine how you must feel.

Continued prayers

Anonymous said...

Mickey,
There are no words that can take away the horrible feelings that you must now have. We cannot always go by what we feel, our life is lived by faith. We do not live by what we see in front of us.
IICor 5:7 Just draw closer to God and hang on to your faith.
As many have already said, there is an army that you can't even comprehend the size that is praying on Cody's behalf. Love BigSis

jeriberinanabana said...

Still saying prayers for this difficult time in your lives.

runnergeel said...

Deck my prayers are yours. they are coming fast and hard. I am sorry for the news. My heart bleeds for you. prayers are coming.
Karen

Anonymous said...

Deck my prayers are yours. they are coming fast and hard. I am sorry for the news. My heart bleeds for you. prayers are coming.
Karen

Monica Cassier said...

I'm so sorry about this report, Mick. Don't lose heart. Prayers for you all.
moon

Anonymous said...

Mickey, I'm so sorry for this devestating report!!! Prayers are continuing for Cody and the family! Cancer is such an ugly disease and hopes that a cure can be found quickly!!!
Teresa (tcoplen)

Kati said...

Just adding my prayers Mickey. My Caroline is the same age as Cody and every time I think of Cody, I know it could just as easily be me in your shoes. My heart just aches for you and the whole family.

Although I don't post on your blog much, please know that we continue to pray for Cody every night. My kids remember him too.

Love,
Kati

209Mike said...

Not fair! Thoughts and prayers to you guys and to Cody - my hero. Keep the faith!

Anonymous said...

My heart is heavy and I am at a loss for words. Sending love and prayers you way,
Lori

Anonymous said...

Prayers contiuing to be sent to you Cody, Mickey, and family. I ferventlyhope and wish for some positive news for all of you. WE think of you constantly.

May God watch over Cody,
DollarBill

TiredMamaRunning said...

I'm so sorry about today's news, Mickey. We'll continue our daily prayers for Cody.

Anonymous said...

Prayers and strong positive thoughts are going your way.
A weekend of Superbowl with the kids and Diane. Lots of junk food and family. That's my wish for you.
Please feel the strength of prayer and hope we all have for Cody. Just hug and enjoy. We will all concentrate on healing prayers.G2G

Anonymous said...

Mickey I just got back from vacation and I am devestated by the latest news. I am thankful that you all will be together to watch the game this weekend and I hope and pray for a Steelers win so that you can all share in the celebration as afamily.

Dan
ACCA

trash talk said...

I can't add anything to what has been said. Just know that I continue to pray to God that he will cover y'all with strength, love and healing. Debbie

Anonymous said...

Continued prayers for Cody and family. I think of him every time I go for a run and always wear my BOP band. Take care, Mickey.
Tamara (Runlonger)

Denise Elizabeth -HopeTreeStudio- said...

Praying for you and Cody. Denise