Here we go....

Today's MIBG confirmed that all 3 spots are neuroblastoma. The original one is in the bone and the 2 new ones are soft tissue lesions. This really doesn't change the treatment. He will be getting radiation in those areas. It will be 9 days of treatment. Cody's liver is starting to act up again. His numbers are rising and they cannot start chemo until they are normal. The 'liver team' suspects that it is being caused by the beta glucan that was used with the monoclonal antibodies treatment in NY. His liver numbers had almost recovered and now that are going crazy again. They are still working on getting an MRI slot (with sedation) for tomorrow. They would like an MRI specifically looking at the bile ducts in his liver, an MRI of his legs (for the radiologist to get 'cleaner' film for targeting) and an MRI of the Head. I think they want to be sure it is clean as neuroblastoma often relapses to the brain/spinal cord (central nervous system). They are going to try a liver drug on him to try and 'kick start' it. The Doctor just called it in so Diane is going to get it.

So there you have it. Cody is taking it all in stride. He wants to kick the bug's butt. He is ready. As for Diane and me, we will do what it takes.

I will close with this thought. The first time Cody was rid of the beast it was gone for over a year from the last chemo treatment. This time it has been 4 months. Does this tell you something? It tells us that the only chance our son has for survival is that we need a cure for neuroblastoma. This desease does not give up... It becomes harder and harder to stomp it out....

Thank you for reading...