Wednesday, January 7, 2009

Well, today is another big day...

Cody will get his MIBG scan @ 2pm. Diane will be taking him in so it will be my turn to wait by the phone. As best as I can say I will be posting what I know around 4pm or so.

I took him in for his injection yesterday and things went very smooth. We were in and out in about an hour. That has to be a record.

I'm still holding out hope that this is an infection or something else. I did talk with the doctor a little while yesterday. Dr. Abu-Gosh is out of the country right now so Dr. Gonzalez is taking over Cody's treatment until she returns. One of the things that made this week so hard to deal with is the fact that we feel like a week was wasted. If it were not for the holidays we probably could have had this scan last week. Thus we could have started what treatment needs to be done a week ago. There is always the anxiety that the more time that passes is time wasted. God forbid, but if it is the beast one week can make a big difference. No matter what this turns out to be one good thing is that it is not around a vital organ like the liver. That area should be very treatable.

Something I have learned over the past 4 years is patience. You spend so many minutes, hours, days, weeks and months waiting. We wait for results of test and scans. We wait for meds to kick in. We wait blood levels to go back to normal. We wait for doctors to call. We wait for the last bag of chemo to finish. We wait for hair to grow back. We wait in traffic going to and from the hospital. We wait for 5 years of NED (no evidence of disease) to pass. We pray and wait for a cure! So here we are, waiting....

I'll post as soon as I hear something....

Thanks for reading....

7 comments:

BIG MO said...

You & Diane are not alone, I'm for
sure waiting,and there are also
many, many friends waiting too. I
check the blog more often than you think.I don't know how you can
keep your mind on your job and wait too.Do you check your email
everyday? Love you all so very,
very much, Till later,
MOM

Anonymous said...

Yes, you wait but we're all waiting and praying with you and praying for positive results and healing for Cody.

Shirley

Dottie O said...

Thanks, Mickey.

Dottie

Matt Birchfield said...

Keep us posted Mickey, either myself or the wife will check back around 4:30 or 5 for an update. You guys are in our prayers.

Matt B

Gettin Older said...

praying for grace while you wait and for a good result

elizabethnyc said...

Mickey, hoping and praying for the best possible scenario today! Sending you and Diane every good thought I can muster.

Anonymous said...

found your blog....am praying for Cody.

Kathi
www.curechildhoodcancer.ning.com
People Against Childhood Cancer
www.caringbridge.org/visit/kelsiemckune