Hey all...

Well it was a very long day. Cody was suppose to have an MRI at 10:15. Well, it didn't happen until 12:00. That being said, Cody did very good waiting to start. His MRI today was for the head and abdominal area that they didn't get to on Friday. The preliminary results are that they look clean. As for the MRI that was taken of his legs last Friday, they have just given us mixed messages. In fact, the two soft tissue spots that showed up twice on the MIBG scan didn't show up at all on the MRI. Personally I don't put much stock in any single test. I look at it this way, "something is going on in his legs." It may be cells that have just not totally come together to form a tumor per say.

After Cody finished his two hour MRI today they took him up to the PICU and did a bone marrow biopsy. In all, Cody was under sedation for over 3 hours. He was scheduled to have his radiation @ 3pm and we didn't get down there until 3:45. To say that this part of the day was rough would be an understatement. He had to be restrained with straps and tape to get him to lay still. The fact that his MRI got pushed back almost 2 hours didn't help much. This is not our first rodeo so you think it would be easier but it isn't. It pushes your patience and it makes it hard not to lose your temper. I know these things happen but it doesn't help.

So here is what we are doing now. He will get 8 more radiation sessions on the bone lesion. As far as the other two mystery spots, the Dr that is in charge of the radiation treatment believes that there is something there and he wants to do a procedure called Cyber Knife on them. First we have to find out if our insurance will cover it. Then there are other issues like the fusion of the growth plates. The growth plates are at the end of the bones and it is exactly as it sounds. This is where the growth of the bone takes place. If there is fusion on the growth plate of one leg that means that leg could potentially end up shorter than the other leg. At this point I hope that is all we have to worry about in the future. As for chemo, his liver still has to get back to normal before it can be started. He started a round of antibiotics to help with that process.



Here is a picture from the Pizza Party. Do you think they like pizza?



Cody right after the Steeler game Sunday..

Thanks for reading...