One step forward, one step back...

As good as yesterday was today was that bad. It all started about 5:30am when Cody had a real bad reaction to the IVIG they were giving him while he was sleeping. I tried to consolidate the things that needed to be done so we could get home early today. Well, we just got home at 8:00. The reaction that he had to the IVIG was major shivering and then fever. It took him 40 minutes or so to get through it. I felt so bad for him. There was just nothing I could do to stop it. The treatment was suppose to last for 4 hours but they stopped it at 1 hour. He was supposed to go down for a CT scan around 9am but I asked them to wait until he got up on his own. He did around 9:30 and they finally fit him in around 11:30. All and all he had a pretty good day. He was fairly cheerful for the bad night sleep and all. So before we headed down for the scan the resident can in and told me that they wanted to try and finish the IVIG treatment. There were going to slow it down to about 5 hours and they gave him different pre-meds before. He finished and was de-accessed about 7pm.

Now back to the scan. It went very quick and Cody was great. He was very still and we were in and out in 10 minutes. I really didn't think about the results today. I was focused that the IVIG would go without a hitch. As we were sitting in his room playing Wii, Dr. Abu-Gosh came to the door and asked if we could step out of the room to talk. I knew instantly that there was a problem. She gave me that look and told me that she could see 4 or 5 spots on each of Cody's lungs and one large spot around his wind pipe. I felt as though someone just punched me in the stomach. Right now we are going to try and enjoy the weekend and head back into clinic on Tuesday. They will probably start radiation on his throat area in hopes of stopping the advance of the large spot. We have to watch his breathing and pay close attention to his swallowing.

I wish I had better news for you all but I don't....

Thanks for stopping in...