Well, today is another big day...

Cody will get his MIBG scan @ 2pm. Diane will be taking him in so it will be my turn to wait by the phone. As best as I can say I will be posting what I know around 4pm or so.

I took him in for his injection yesterday and things went very smooth. We were in and out in about an hour. That has to be a record.

I'm still holding out hope that this is an infection or something else. I did talk with the doctor a little while yesterday. Dr. Abu-Gosh is out of the country right now so Dr. Gonzalez is taking over Cody's treatment until she returns. One of the things that made this week so hard to deal with is the fact that we feel like a week was wasted. If it were not for the holidays we probably could have had this scan last week. Thus we could have started what treatment needs to be done a week ago. There is always the anxiety that the more time that passes is time wasted. God forbid, but if it is the beast one week can make a big difference. No matter what this turns out to be one good thing is that it is not around a vital organ like the liver. That area should be very treatable.

Something I have learned over the past 4 years is patience. You spend so many minutes, hours, days, weeks and months waiting. We wait for results of test and scans. We wait for meds to kick in. We wait blood levels to go back to normal. We wait for doctors to call. We wait for the last bag of chemo to finish. We wait for hair to grow back. We wait in traffic going to and from the hospital. We wait for 5 years of NED (no evidence of disease) to pass. We pray and wait for a cure! So here we are, waiting....

I'll post as soon as I hear something....

Thanks for reading....