Thursday, August 28, 2008

What a difference an hour makes.....

After I posted yesterday we received a call from MSK about an hour later. It was Dr. Modack and he called to inform us of some changes. They had reviewed the scans that were taken of Cody last week. One of the scans has shown some concerning uptake in Cody's liver. As you remember, the liver is where the latest tumor was removed. This uptake is identified by the nuclear dye that is mixed with dextrose and injected into Cody the day before the scan. Cancer cells are much more aggressive and hungry than normal cells so they consume the dextrose very quickly and light up from the dye. This uptake is nothing new. It has been showing up ever since he liver resection and hasn't changed much since. None the less, they are making a change in the plan of attack. They are still going to give Cody 3f8 but they are switching the drug that will be administered with it. They drug is called B-glucan and it is a byproduct of yeast, mushrooms and other foods. This process is much less proven than the first. In fact it is considered a phase one study. Cody will be starting a week later than first planned and it will be administered for two weeks at a time instead of one. There will also only be 3 weeks between treatments. "We are in for a long rough ride." Cody and I also don't have to go to Georgetown today.

While I'm posting on a negative note, I have to comment about the kids. As I posted before, they have many things planned for us, things such as putt-putt golf, water parks, amusement parks. I've got to say, no matter what we are doing the kids seem to be fighting most of the time. So much so, that I don't want to take them anywhere else. I know what you are thinking, "that's the way all kids are." Well, you are right but we are also the way parents are and I feel as though we need a break also. We went to play putt-putt last night at 8 dollars a head and they were arguing and fighting the whole time. It was all I could do to keep my cool. I felt like spanking them all right there but I didn't want to spend the evening in jail. This vacation has not been as relaxing as you would think. I've been reflecting on everything and I'm having one of those rough times dealing with it all. The phone call didn't help much either. You know, when your child has an awful disease like this you not only have to deal with it but you have to deal with all the other things that parents and two very different married people do. I'm running on empty....

I hope it gets better. We are suppose to go fishing this morning.

7 comments:

Anonymous said...

Mickey I don't even begin to try and put myself in your shoes even though I understand everything that you are going through, you have been dealing with this much longer then I, and I am starting to see some light at the end of the tunnel. All I can say man is stay strong! Cody needs you as well as your family.
Just remember this the Lord will never give you more then you can handle!
Prayers of strenght for you and your family and prayers of healing for Cody!
God Bless
Bruce

Gettin Older said...

Mickey it is a rough time and everybody is stressed. (Of course you know that) Kids don't react to stress the same way that we do, and yeah you have to be the parent in those situations. I have not been where you are. I wish nobody would have to go through what you have been through already. But, You've been an inspiration, and you have done a great job so far.

So, go fishing, try to have fun, and don't throw any kids off of the boat or pier....

elizabethnyc said...

Mickey, I don't really know what to say. I wish this week was refreshing physically and mentally for ALL of you. Just know that the prayers continue...

Dottie O said...

Oh Mickey- I just hate to read that you have to deal with the whole "two-steps-forward-one-step-back" stuff. And that so often you get an idea of what to expect and then a phone call changes everything.

Remember when you feel like you are at the end of your rope we are all here to listen and help you hold on.

Dottie

Anonymous said...

Mickey, I can't even imagine how you feel at the moment, but please remember we are here for you. We may not always know the right thing to say, but we are listening.
As you well know I don't have any kids so take this as you like. Kirk hit it on the nail when he said kids handle stress differently than adults. They are looking for someone to ground them, of course what they would really like is to know that everything is going to be ok. In that absence strength and stability is what they need.

Prayers of strength and patience for all of you and health for Cody.

Susan and Jonathan

Anonymous said...

Your strength amazes me. I hope you can all get a bit of rest and peace at the shore. Each in their own way. Kids are a challenge at any time. You have stress to the 10th power and cope better than most. Pat yourself on the back. You and Cody are an inspiration to a lot of people. Positive thoughts and prayers continue. G2G

the godfather said...

nice blog. i love family blogs. stay well.