What a difference an hour makes.....

After I posted yesterday we received a call from MSK about an hour later. It was Dr. Modack and he called to inform us of some changes. They had reviewed the scans that were taken of Cody last week. One of the scans has shown some concerning uptake in Cody's liver. As you remember, the liver is where the latest tumor was removed. This uptake is identified by the nuclear dye that is mixed with dextrose and injected into Cody the day before the scan. Cancer cells are much more aggressive and hungry than normal cells so they consume the dextrose very quickly and light up from the dye. This uptake is nothing new. It has been showing up ever since he liver resection and hasn't changed much since. None the less, they are making a change in the plan of attack. They are still going to give Cody 3f8 but they are switching the drug that will be administered with it. They drug is called B-glucan and it is a byproduct of yeast, mushrooms and other foods. This process is much less proven than the first. In fact it is considered a phase one study. Cody will be starting a week later than first planned and it will be administered for two weeks at a time instead of one. There will also only be 3 weeks between treatments. "We are in for a long rough ride." Cody and I also don't have to go to Georgetown today.

While I'm posting on a negative note, I have to comment about the kids. As I posted before, they have many things planned for us, things such as putt-putt golf, water parks, amusement parks. I've got to say, no matter what we are doing the kids seem to be fighting most of the time. So much so, that I don't want to take them anywhere else. I know what you are thinking, "that's the way all kids are." Well, you are right but we are also the way parents are and I feel as though we need a break also. We went to play putt-putt last night at 8 dollars a head and they were arguing and fighting the whole time. It was all I could do to keep my cool. I felt like spanking them all right there but I didn't want to spend the evening in jail. This vacation has not been as relaxing as you would think. I've been reflecting on everything and I'm having one of those rough times dealing with it all. The phone call didn't help much either. You know, when your child has an awful disease like this you not only have to deal with it but you have to deal with all the other things that parents and two very different married people do. I'm running on empty....

I hope it gets better. We are suppose to go fishing this morning.