Friday, February 13, 2009

Not much.....

to report here. I will be taking Cody in for radiation today. His last treatment on his chest will be Monday. It was decided that we can no longer wait for word from the insurance company on the Cyber Knife issue. It seems that their word is final and/or nobody else cares to intervene or has no influence on the all mighty insurance companies. The doctor at radiation says he will try to use the regular treatment and hopes to minimize the damage to his growth plates. We will address the insurance company at a later date. Cody is our number one focus right now. As of yesterday his bilirubin numbers are still climbing but his other liver numbers are down slightly.

So, next week we continue radiation on the legs to try and stop the onslaught of the beast in his little legs and hopefully relieve some of the pain. On Wednesday he will have a CT scan on his torso and neck to see what affect the chemo had on those areas.

This weekend will be a special one. Tomorrow is Chris's 20th birthday and the kids and Diane are going to have a party for him. You all know how close he is to Cody and he is like one of our kids. Next year we'll be able to go out for a beer... :)

Justin crosses over from Webelos to Boy Scouts on Sunday. He has worked hard and stuck with it through the rough years and I am proud of him. It would have been much harder if it weren't for the support of the other pack parents. When I couldn't make it they made sure to pick him up on meeting nights and to other special trips. Again, proof that we have so much support during this time of need. Thank you all....


Anonymous said...

Happy Birthday Chris! I know how much you mean to Cody, Justin and Abby.

Congratulations Justin on making it to Boy Scouts!

Praying to relieve Cody's pain and shrink the current spots. Praying for the liver to get better.

Susan and Jonathan

Dottie O said...

Well, you are doing what you have to do. Have a great party with Chris and huge congrats to Justin advancing in Boy Scouts.

Remember that people are good and want to help in any way they can.

Hugs to all of you,


Gettin Older said...

Congrats to Justin. Michael crossed over a couple weeks ago.

Continued prayers for Cody and the rest of you.

Anonymous said...

As it is Valentine's tomorrow- lots of love to you all. Give Cody an extra big hug. We are all still praying for his healing- Cyberknife or no. The master Healer will take care of him.

Congrats to Justin. My son branched over last year. It is a good program. Tell him to stick with it. It gets even more fun.

Have a great weekend.

Jim @ Acca/TRANE

Anonymous said...

Happy Birthday to Cris; Happy becoming a Boy Scout to Justin; Happy Valentines Day to Abby and Mom; Happy weekend with the family to Dad; and

Happy liver count is looking a little better to Cody!!!

Enjoy the whole weekend making lots of great memories!

Hugs to Cody, Pat (ACCA-NCC)

Anonymous said...

Enjoy the whole weekend! Tomorrow is my next marathon...mile 22 is for Megan, but mile 7 (big Ben's #) is for Cody and he is always part of mile 23 when I go through my entire prayer list.
Continued prayers!
God Bless

Anonymous said...

More prayers for you Cody and for the whole family. Congratulations to Justin and Happy Birthday to Chris.


Catherine said...

Please call me about Cody's insurance challenges. My name is Catherine and I work as the patient relations manager for Accuray the makers of the CyberKnife. We have helped several patients with their insurance battles and I may be able to offer you assistance in areas you haven’t explored. Please call me 408-789-4301 (office) or 408-605-1821 (cell).

Anonymous said...

Mickey,I hope you have made that call to Catherine - hopefully she can help!!

Happy V-Day Cody - lots of hugs being sent your way!

Hugs to Cody, Pat (ACCA-NCC)

Anonymous said...

Happy Valentines Day!

Susan and Jonathan

Anonymous said...

Happy Valentine's Day! Sending hugs, love and many prayers your way.