Update...

Yesterday was a much better day than Monday. We were awakened at 7:30 by Cody standing at the bedroom door saying “let’s go to the beach guys.” “Get up, I want to go to the beach.” So, with one eye open I helped Diane get the kids together as quickly as possible. With Cody, the last few days you have to seize the moment because the mood can do a 180 in seconds. We headed down to the beach and were able to have about 30 minutes of fun with Cody and the kids playing in the sand. I cannot say enough how he has changed. There just seems to be very little happiness in our little boy. He has only laughed a couple of times in the past few days.

We had some visitors yesterday. Diane’s father and his wife spend the winter months in Florida every year. They drove over from St. Pete which is on the Gulf Coast. Also my oldest son Mickey Jr. drove up from Tampa. Mickey hasn’t seen Cody since before he was sick 5.5 years ago. I also forgot to mention that my daughter Corie was able to get home from Guam on Saturday before we left.

Today I will be taking Daniela up the road for a ride on an air boat. It was originally set up for Cody but he wants nothing to do with it.

Cody had a temp of 101.6 last night. The magic number is 102. He will have to go to the ER if that happens. We are trying to move flight up to Saturday if possible. It is very touch and go right now. We really don’t want go to another hospital. Since Cody has made it to the beach already I guess we can leave at anytime. I’m not looking forward to the flight back. Although the people of Air-Tran were absolutely wonderful, just getting from here to there and keeping Cody happy is not an easy task. He is hard of the other kids.