Wednesday, February 25, 2009

Update...

Yesterday was a much better day than Monday. We were awakened at 7:30 by Cody standing at the bedroom door saying “let’s go to the beach guys.” “Get up, I want to go to the beach.” So, with one eye open I helped Diane get the kids together as quickly as possible. With Cody, the last few days you have to seize the moment because the mood can do a 180 in seconds. We headed down to the beach and were able to have about 30 minutes of fun with Cody and the kids playing in the sand. I cannot say enough how he has changed. There just seems to be very little happiness in our little boy. He has only laughed a couple of times in the past few days.

We had some visitors yesterday. Diane’s father and his wife spend the winter months in Florida every year. They drove over from St. Pete which is on the Gulf Coast. Also my oldest son Mickey Jr. drove up from Tampa. Mickey hasn’t seen Cody since before he was sick 5.5 years ago. I also forgot to mention that my daughter Corie was able to get home from Guam on Saturday before we left.

Today I will be taking Daniela up the road for a ride on an air boat. It was originally set up for Cody but he wants nothing to do with it.

Cody had a temp of 101.6 last night. The magic number is 102. He will have to go to the ER if that happens. We are trying to move flight up to Saturday if possible. It is very touch and go right now. We really don’t want go to another hospital. Since Cody has made it to the beach already I guess we can leave at anytime. I’m not looking forward to the flight back. Although the people of Air-Tran were absolutely wonderful, just getting from here to there and keeping Cody happy is not an easy task. He is hard of the other kids.

32 comments:

Anonymous said...

Glad to see you updating the blog... Sent you a text message the other day to let you all know we are thinking about you...Give Cody, Justin, Daniela and Diane our best and keep some for you too!

J & C

Carol G said...

I have been praying for this trip for days. I'm so glad that he got to go to the beach! Please know that your child is being prayed for constantly. I am praying for all of you, but this is Cody's trip, and he is the main focus. I will also pray for a very uneventful trip home.

Dawn said...

Praying for you and continuing to ask God to give you wonderful memories and safe travel back home.

Rhonda said...

Praying for Cody and praying you can be there until Saturday!!!Enjoy every moment with him..I will keep praying for you all..

Anonymous said...

Glad you were able to get to the beach. Hopefully, the rest of the week will go relatively smoothly. More prayers said today.

Greg
(mysol)

Gettin Older said...

Thanks for the update. I'm so happy that he made it to the beach. I just dropped a package in the mail. I hope it get there for when y'all get home.

TiredMamaRunning said...

Very glad you made it down to the beach, and will pray for a boring and uneventful return trip.

Anonymous said...

Glad to see that you have been able to get to the Beach!! Enjoy it there for as long as possible and soak in every minute! Remember that everyone is praying and wishing only happy thoughts for the entire trip!

Monica Cassier said...

Glad Cody got to the beach...

Diane said...

So glad to hear that Cody had a better day. I continue to think of you all and wish for everyone strength and peace in the days ahead.

Mazzy Blue Studios said...

I'm so happy Cody got to go to the beach!!!

Anonymous said...

Thanks for updating us. Glad Cody was able to make it to the beach even if only for a little while. Praying that his temp goes down & he & you all can enjoy a few more great days there.

Hang in there...

Jim-Trane/ACCA

elizabethnyc said...

Mickey and Diane,
Hoping that the next few days are fun for all and that Cody is feeling well enough to enjoy things. Hoping the travel home goes smoothly as well.

Prayers continue and hugs to all,
ElizabethNYC

Anonymous said...

Mickey, so glad y'all made it to the beach. Hope the rest of the trip gives y'all some great memories. Continued prayers for Cody and family!!!
Teresa (tcoplen)

Anonymous said...

Mickey, Glad to hear that Cody was up for going down to the beach. His excitement was well worth the early wakeup I am sure. I hope his temp stays below 102 and you all can enjoy some more fun times together.
Continued Prayers as always!
God Bless,
Bruce

Dottie O said...

I'm so happy that Cody got some beach sand between his toes. Hoping that the fever goes down enough to make the rest of the breach stay and trip home uneventful.


Dottie

runnergeel said...

Glad your feet touched the sand. I with Kazzy...hope home is boring and usual.
prayers
Karen

jeriberinanabana said...

I'm so glad Cody got to the beach. I'm also glad your grown children could come and see him. Praying his temp stays below 102°, and you can stay as long as you need to make memories.

Anonymous said...

Positive thoughts and prayers continue for Cody and your beach escape. I hope he has more good days while here. I also hope Daniela and Justin are enjoying the break.
Thinking of you often and praying for comfort for Cody. G2G

wvamom said...

I'm praying for Cody and for the rest of your family. Carolyn

The Murrant-Johnson's said...

Praying Mickey that you have a peaceful night tonight with no visits to the ER.

Our thoughts and prays always for the whole Johnson Crew.

Love,
Shirley M-J

Anonymous said...

Prayers to you and your family from San Diego. May the memories you make on this trip help bring you peace and joy in the coming months.

Ken and Jill Blattner said...

Praying for Cody and the rest of your family. So happy to hear that he got to the beach! I pray that you all enjoy all of the time that you are spending together! You are in our family's thoughts and prayers. What a great little guy you have!!

Terri said...

So glad Cody made it to the beach..hope you all can stay a few more days...have a safe trip home

Keeping Cody and all in my prayers

Hugs
Terri

Veronica said...

Praying for your family.

Anonymous said...

Thank you for keeping us connected. I'm glad to see that Cody got some warm sun shine and salty air. May God's peace continue to hold you all together. I am praying that no trips to the ER are needed.
Love, BigSis

Rose Haven said...

We continue to pray for you all...

The Murrant-Johnson's said...

mick,

I wish i knew where you were in Vero . I would love to come visit, but I would only come if i was invited. glad to hear he made it to the beach and he did have some visitors.

Love you all,
Your little Bro,

Alan

Anonymous said...

I am so glad to hear that he got to the beach and had some fun in the sand. I hope Daniela has a good time on the power boat. Praying that his temperature goes down. Praying that you are able to make more happy memories. Glad to hear that Mickey Jr. got a chance to see Cody. Corrie glad to hear you got back to see him on Saturday.

Susan and Jonathan

Glorybelle said...

Most definitely seize EVERY moment! I'm thinking of Cody and all of you!!!

Hoosiermama said...

glad to hear that Cody made it to the beach..... Praying for your family

Anonymous said...

Mickey,

Read your blog everyday when you post, just want you to know I think About your guys all the time and we are here for you if you need us for anything.


LH