This is obviously not a vacation.....

It seems as though our little boy is slipping away from us. He is just not the same child. He no longer wants the kids or me around. Diane and Chris are who he wants to be with. He did allow me to play putt-putt with his gang today. I was able to pick him up and hold him a couple of times. I was even able to put my nose in his hair and smell him again. For those of you who have followed my blog a while you know that is one of my favorite things to do. There is something about a small child’s hair and their smell. It just makes me feel so close to him. I’ve missed it terribly. Throughout the game he worked very hard to walk from one hole to another. His limping is getting very bad and he is losing his muscle tone also. I’m not sure if the radiation worked. After he would get his ball in the hole he would sit down near the hole and wait for us to finish. He seemed to drift far away with a blank stare in his eyes. He doesn’t want you to speak to him unless he speaks to you first. He also does not like to repeat himself. It makes him so angry.

It appears that we will be leaving Saturday afternoon. I’m almost thinking that we need to get 3 seats away from their 3 seats just to keep the peace. I think we need to get home and be close to his doctors. There is a bit uneasiness about teetering on the edge of going to the hospital. I’m sure they have very good hospitals here but they are not Georgetown. The doctors are not his doctors.

Justin and Daniela seemed to be having a pretty good time. We’ve been trying hard to let them do as they please. Justin has met a boy and his brother who are from Vermont. They have spent the last 3 days together. Daniela has been playing with them and today she found another young boy to play with. I think I will rent bikes so we can ride down the road. I feel like the best I can do now is keep the other two kids away and everyone will be happy.

Thanks for reading…

Morning Update: Diane just woke up. She said that she and Cody were laying in bed last night and he told her that his tummy hurt and it feels like a Great White shark is biting him. She said that maybe you will feel better in the morning, he said "no I won't." It is really breaking her heart. She watches him at the pool or playing putt-putt and she says he is so depressed. He watches the other kids play and he knows he just can't do it. I believe Max's dad. The darkest days are yet to come. This is just heart breaking.