Well, our hospital visit could not have gotten much worse today. The results of Cody's CT scan was much worse than we thought possible. His little lungs are 50% covered with cancer. He is also showing spots in his liver. To use the word devastated would be a major understatement. The doctor couldn't tell us how much time we had but with the progression of the beast from the scan 3 weeks ago to today she thinks it could be 2 weeks to 2 months. He will start getting short of breath as this progresses. She said that they can keep him comfortable and he will have to go on oxygen when the time comes. There is basically no way we can treat him now other than to do a little more radiation on his legs to relieve the pain. She is going to ask the radiation Dr. if there is any way to treat his lungs but she doesn't believe there is.
So, we are now planning on leaving for the beach this coming Monday. We are going to go as far south as the train will take us. We will deal with the plans in the next few days. Cody was suppose to get radiation on his legs through next week but the doctor says that we need to go to the beach now. Cyber Knife is no longer a concern. We are no longer pursuing that treatment. We are now in memory making overdrive mode.
We have decided that we are not going to tell the kids until we absolutely have to. We don't need anymore people worrying than we already have. As far as Cody goes, we are just going to keep him as happy and comfortable as possible. I wish there was better news to report but there unfortunately is not.
Thank you all for the prayers.....
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132 comments:
love and prayers Mickey...
sending you a Facebook msg
Diane - Mickey - RE/MAX family is thinking about you now more than ever!!!! Nothing we can say, but that we are here for you. Diane - if you guys need anything - u call.
Kim
Our thoughts and prayers are with you and your family right now. We're all here for anything you guys need.
Oh I don't know what to say. I wish I could do something...something that means enough.
My prayers will not stop.
anything you need...I am here.
Karen
Micki,
just reading this is breaking my heart. I won't stop praying!
Lilly123 (RW)
Love and peace to your whole family...Oh, I wish...
Mickey, I too am at a loss for words. If there is anything at all I can do, please don't hesitate to ask. My prayers continue, for peace for all of you...
My heart just goes out to all of you. I feel like there is nothing I can say or do for you but I just want you to know that you are in my prayers and I hope that the trip to the beach is full of moments to cherish.
Kate(feetdon'tfailmenow)
Prayers for strength and courage.
Our prayers remain the same...praying for a miracle. Peace and strength to you and Diane. Blessings and prayers for Cody.
Mark, Daphne, Cristina, and Nick
MDCN
Make every moment of this time count - make wonderful memories for everyone.
Know that prayers continue and hugs are tucked in this note.
Hugs to Cody, Pat (ACCA-NCC)
Oh, Mickey, I'm so sorry that it's come to this. Make some wonderful memories at the beach! Prayers continue for you all.
Teresa (tcoplen)
i DON'T KNOW WHAT TO SAY MICKEY AND DIANE EXCEPT ARE LOVE FOR ALL OF YOU AND ARE PRAYERS FOR YOU. LOVE THE JACKSONS
I can't except the fact that this is really happening.I guess I'm still hoping and praying for a
miracle some where.God please take
this awful thing away from our BIG GUY. This is so unfair for a child.
GOD BLESS you all Mickey. You know I LOVE you all so very, very much.
LOVE and KISSES, MOM
Prayers continue
I found your blog through a friend on FB. My heart goes out to you and your lovely family right now. I pray that God surrounds you with the peace and understanding that is only His in a time like this. Easier said than done I know. God bless you and bring you the strength that you need during this time.
Mickey
I've started to know you as DeckApe the runner last July from RW. I've come to know you as Mickey,the very loving, very caring father and husband who has done everything humanly possible for his family. You are truly a role model to emulate.
Please go to the beach and enjoy your family, but also enjoy yourself.
My prayers continue for God's blessing over you and the family.
DollarBill
Mickey and family I will continue to pray. If I can help with planning - or getting the mail or anything while you are gone let me know. You have my email - I will drop everything to help.
I am so sorry, Mickey and Diane. I will keep praying for Cody's comfort, and praying for all of you. I cannot imagine what you must be feeling. I just wish I could take away some of the pain in your hearts.
I ran across your blog a few weeks ago through another blog that I came across though another blog. There is nothing anyone can say or do in this kind of situation, but please know that you and your family are in my thoughts and prayers.
Mollie from Kansas City, MO.
Prayers every day, for all of you.
Tamara (Runlonger)
More prayers your way Deck for you and your family.
Rocket63 (from RW Masters)
Diane and Mickey,
I am so sorry to hear this. My family and I think about you and the kids constantly. Lots of praying and hoping for you and your family.
Regina
Oh my. Prayers for a miracle and relief and the most wonderful memories.
Dottie
Dear Mickey, Your family is in my heart and in my prayers. Just KNOW that GOD will give you the strength that you need to deal with all of this.
F**k! I'm so sorry that you're being sent down this road. If there's a way that you would feel comfortable sending me a mailing address, I'd love to send something to Cody, just to let him know that lot's of people around the world are thinking of him. If you don't care, have the time, or just don't want to, I totally understand. Hang in there. Take lot's of video. Capture his voice. It's more valuable than gold.
Andy, Max's dad
amikulak(at)yahoo(dot)com
Prayers continue for all of your family. All of our hearts hurt for you. You continue to be an amazing family. Enjoy the beach. If you are down this far south, and need anything you know the number. G2G
Andy (Max's Dad) took the word right out of my mouth when I read this post. My heart has shattered into a million pieces for all of you tonight. I can only imagine how you are both feeling. I have faith in God but it doesn't make me less angry at why these things happen to people, families, loved ones, children. It does not make sense to me but I know Cody's life has meaning because he brought so many people together in his name and His name. I am continuing to pray for strength for all of you, peace and comfort for Cody, and memories that you will make at the beach that will fill your heart with warmth.
I am so very sorry. )=
Love,
Mary
Heard of your little Cody from Max's dad... prayers and love from San Diego.
I am so very sorry. God bless you and I will ask everyone to pray.
I'm praying...don't know much else to say, too choked up!
Gregory (Pudov)
My heart goes out to you. My words are so useless. My ehart is breaking for you. thinking of you all.
I'm so sorry. My heart just breaks for your family.Your sweet boy will be in my prayers.
Love,
Kim Kow
Mickey and Diane,
I am so sorry. My heart is with you and your entire family. I am so glad that you are going to the beach. Sounds like the perfect place to be right now. I know you will treasure every moment.
Wendy
So faith, hope, love abide, these three; but the greatest of these is love. I Corinthians 13:13.
http://www.footprints-inthe-sand.com/index.php?page=Poem/Poem.php
Seeing the picture of Cody in the sand and reading about the trip to the beach. I just wanted to remind you that the Lord is with you and you are all being embraced by His love and carried by Him. Please don't forget to look for His Footprints this week too. And know that you are all in our hearts and prayers.
The Wilsons
I found your blog from the Riggs blog.
I will be praying for your family.
Cindi
Mickey,
There is nothing I can say to convey the feelings of helplessness that I have right now. All I can do is let you know that we care and wish there was a way to make all of this go away. Please let me know if there is anything that you need.
Damn!
Take care of yourself buddy....
Sending love and hope from the west coast.
Ron
love you all! praying for you guys....please let us know if you need help with arrangements, planning for the beach!
<3333333333333333333333333
I'm sorry that "the beast" has returned.
You all are in my prayers.
I hope you have a fun and safe time at the beach, and he will be able to keep up.
The beach is the best place in the world.
I am at a loss for words. My heart aches for you all at everything you must be going through now. Anything we can do please let us know.
Love and prayers.
Susan and Jonathan
There simply are no words that are remotely adequate.
Live in the moment, make great memories and hug each other a lot.
Continued prayers...
Sam
Dad,
I will be home as soon as the Red Cross message makes it across the pond. I love you guys!
Corie
thoughts, prayers and tears for you from us in Minneapolis.
Mickey and Diane,
My heart just aches. May Cody find joy and peace at the beach and your trip be filled with many treasured moments. Surrounding you in love and prayers today and always.
With love and prayers,
Lori
We don't know your family but know of your journey through the Mikulak family website. Our prayers and hearts go out to you and yours. Much love from people you may never meet.
We're praying like crazee...just found your blog today through kelli @ ugottafriend.blogspot.com
My heart aches for your family, but please know that we are praying for you, insistently!
Hey Bro,
Hug, squeeze, inhale and soak up as much you can of him!!! I am numb from head to toe and pissed off at the world right now! We want to come visit but don't want to intrude on your precious time! I know that you probably don't want to talk but will try and call you soon. My heart is crushed and can't imagine what your feeling.
Sending much love, Shawn, Kelsey, Alysse and Elijah.
I came here via the Riggs family blog. I am so very sorry to hear what Cody and your family are going through. I am asking God to grant you strength and comfort to carry you through this time.
Lori in Fredericksburg, VA
Our thoughts and prayers are with you. We would be honored to send you (no charge, of course) a CD that Cody might enjoy; a CD inspired in part by children at the Kluge Children's Rehabilitation Center in Charlottesville. We have given many to the children there that enjoy the music. We visit twice a month to play guitar and sing.
You can preview a song or two at http://graspingatlaws.net/music.html - the first three are from the CD we'll send, titled "It's Time That Time Was Overthrown".
We wish you the best of Now, always,
Greg & Alice the Canine Messiah
Oh...
and you can email Alice@graspingatlaws.net to reach us...
With Love...
Mickey, My heart just tore apart when I read your latest post. My Prayers are always with you!
God Bless,
Bruce
Mickey and Diane, I am devestated by the news and can only hope that you all have a great time together next week. If there is anything that you all need please don't hesitate to ask.
Dan
This news has impacted us all. Love, thoughts and prayers will continue.
Shirley
Mickey, My family's thoughts and prayers are with you right now. I think we're all hugging our families a little closer.
Prayers for strength and peace continuing for Cody and the entire Johnson family.
God bless all of you Mickey.
Hugh (runner/hiker)
Mickey and Diane,
Please call if there is anything that you need help with. We all would love to come and be with you all at this very minute, but we too agree with Shawn that we understand your need for some privacy right now. We are ready to be there the moment you want and need us to be. Waiting to help, Love, BigSis
Mickey and Diane,
I'm so sorry to hear this news, I was not ready for it. I am devestated, my heart goes out to each and everyone of you. As, Shawn, Mom and everone else said, go to the beach, play games, read books, do what ever but enjoy every momment with that little guy Cody, Justin and Abby.
If you make it this far south we would love to see you, but if not, Enjoy yor time. let me know if you need me, I will drive up as soon as you want.
Stay strong big Bro, Love and prayers for the entire family.
Love, Your Little Bro,
Alan
You don't know me...I live in Atlanta. We have found a 3 bedroom condo in Virginia Beach for your family. You can go there on Monday. The lady that is donating the house is also a professional photographer and is willing to help you document this trip. Her name is Sue Watson....Please contact me at kptectm@bellsouth.net or 800-700-2530 (work) ask for Karen Price. Monday is fine and stay as long as you want to or can! God bless you all...my prayers are with you and your son.
Karen Price
Diane & Mickey,
My heart is aching for you. Words are useless, as a mom I know. I hope my hug, love and prayers to you are some comfort. Cody knows you love him and is incredibly blessed to have you and your family...soak up each moment and memory, all our love, Donna & Greg from Georgetown. I would love to send Cody some of our favorite legos if you wish.
Mickey, Diane - I have been praying so much for Cody lately. Like everyone else, I just wish I could do something to make it better. God Bless.
Greg
(Mysol)
I was led to your site from Max Mikulak's website. I am heartbroken for Cody and your entire family. This beast is unrelenting. Make as many memories as you can and know you have many many people praying for you and wishing you weren't in this place.
I am so sorry. I will keep your family in my prayers.
Mickey -- You don't know me, I have learned of little Cody's brave fight through a common friend (Monica C.) Add my voice to the prayers that God will hear for Cody and your family. Kevin K.
I think I'm gonna throw up. Our thoughts and prayers are with you and your family.
I often lurk on the RW masters forum and have been following your blog. Cody is the bravest little guy. I'm sure you are so proud of him. My heart breaks for you and your family. You will all be in my prayers. Enjoy your time at the beach.
Stacey
I will pray for Cody & your family.
I learned of your blog site through a friend of mine in Dallas GA. I am waiting for a phone call back but I may have a condo on the beach in Daytona, FL. I will post on here as soon as I hear from the owner. You can email me at kriandthur@att.net
My thoughts and prayers are with you and your family.
Kristin
Its all been said by everyone already but we are all saddened and were hoping that Cody would win his fight. We have all been touched by his brave struggle and by your words & example. Just know that we wish we could trade places with Cody if we could. It is so unfair. But remember that if you believe, then this is not the end. Enjoy your time at the beach and know that you will meet again in a place with no pain or illness & sadness. Will pray for a safe trip and for strength for all of you and peace & happiness for Cody. God is still with you...
Jim @ TRANE/ACCA
Just wanted to pass on some addtional info which I am sure has been thought of before- This is from a friend of a friend who works for MAW
Northern Va. comes under Mid Atlantic MAW
5272 River Road Suite 700
Bethesda, MD 20816
301-962-9474
Coordinators name is Lisa Caprano
Also for Richmond here's the toll free number 1-800-217-9474
"The doctor, hospital social worker, or parents can request the wish. Make sure when calling to say a RUSH WISH. I will call the Richmond Office myself in the morning and try and pave the way."
My heart aches for you and Diane - Prayers continue as your journey progresses for comfort and peace.
I hope you go where you do not have to worry about cooking or cleaning up, enjoy the moment.
Love you all!!
Shirley M-J
so sorry, such a shame! I am so pleased that you are heading for fun and sun. I hope your memories are amazing and last forever!
i found your blog through a link on the riggs family blog. i am praying for you and your family. i am an rn who has seen what this does to families and will pray for the highest level of comfort for cody and the highest level of peace that God can give you and your family.
I found your blog from the Riggs blog. I just wanted to say that from one mother to another, I applaud your decision to go make memories! What a precious gift that will be to all involved.
Michelle Mann
Alaska
I've read and re-read that latest post a number of times. I can't even imagine what your family is going through, and just wish you peace.
Ros K (dtc)
speechless, helpless, numbness,sadness, useless, Words are useless in trying to convey how we feel right now. We can only keep you guys in our thoughts and prays. we are here for you. whatever, whenever, however needed.
love,
john and Cheryl
This picture will be on our blog tomorrow, along with the prayers of our readers.
I'll email a larger pic to you, if you want it.
http://www.brentriggs.com/blogpics/cody.jpg
Our daughter has Leukemia. We understand a bit what you are dealing with.
Brent (Abby's Dad)
www.riggsfamilyblog.com
Mickey I Hope and of course Pray that you don't see this for a LONG, LONG time because you, Cody and your family are too busy first enjoying the Fla. beaches and everything else that is down there, and also you and your family are enjoying time with Cody as he and you all make time count. As I stated may that Time keep counting for a LONG, LONG time.
Collect Adventures Cody. Collect Adventures.
I am truly sorry for what you are all going through and I will say a prayer for your sweet child tonight. My son has been fighting leukemia for over three years now and my heart breaks for all the little ones fighting the beast that cancer is.
Maureen Frost
Youngstown, OH
There are no words... Please know you are in my thoughts and prayers.
Max's Nana
I wish there were words--know we are here praying. Our hearts break for you--enjoy each moment of each day--they are precious jewels you will carry with you always. With love and prayer-Max's Annee Ranee
Mickey and Diane, I don't know what to say, except that our thoughts and best wishes are with you. I hope you all have a peaceful and carefree time at the beach, and hope Cody can be just a happy little boy and have lots of fun time.
Praying for Cody and your whole family. Lisa
you are in my thoughts and prayers..
praying here!!! Please know that you are in our thoughts and prayers!!!!
Dawn and family in MD
Coming over from the Riggs blog...please know that Cody and your whole family are in my prayers. Take comfort in the One who gives peace and Life.
In Him,
Rachel
I hopped over from the Riggs blog and want you to know that I'm praying for all of you and especially Cody right now. I can't tell you I know how you feel because I can't imagine it but I'm praying for you!
I'm just crying for you {{hugs}}. Your family is in our prayers!
Found you through the Riggs Family blog..... praying for your son Cody, and your family.
I too was brought to you by the Riggs family blog. My words are all incapable of expressing what I want to say. Prayers, prayers, prayers. For all of you.
I'm so very sorry. My heart aches for you. My prayers are yours.
Prayers, all of my prayers.
Poor sweet Cody.
i am shaking as i am typing this..i am so sorry...just sorry..i wish there was something i can do/say..other than to say that i am praying for Cody to be as comfortable as possible. have a safe BUT extrememly fun trip to the beach. i hope these memories in the making are the very BEST they can be....
I just found your blog. I will be praying for your family and for Cody's comfort!
Know that people are praying for your family
I found you by way of Brent Riggs' blog and I just want to say that my thoughts go out to you and your family. Although we don't know one another - I will be praying...and others here in Alabama will be praying for your family. May God grant you beautiful weather and many wonderful memories that you can treasure always.
May God comfort you during this time of heartache.
Praying for your son and your family, and have asked my readers to do the same.
Praying for your whole family. Lifting you up to the one who can bring peace and joy through this hard journey you are traveling.
I'm checking each and every comment as usual and am so glad so
many people are praying for my son
and his family. I'd like to THANK
YOU all as Mickey has been doing.
I still keep praying for a MIRACLE
to happen..... LOVE AND KISSES to
our BIG GUY CODY and his family..
LOVE you all much,MOM & GRANDMA
Just found your blog through Abby's family and know that you can use another prayer warrior. Praying for peace, comfort and many many wonderful memories to be made with your precious and handsome little man! There are really no other words to say to ease your pain, but know that Cody is being covered in prayer!
Found you on the Riggs blog! I am praying for your precious Cody!
Have a blessed trip on the beach.
Jennifer
There are no words other than I'm so sorry and will continue to pray for Cody, and everyone in your family.
We are sad to hear about Cody. We pray for strength & peace to be able enjoy every moment to make a lifetime of memories to hold onto.
Our family and friends are all praying for you all and for Cody's comfort during this time.
sending up lots of prayers...
you are in my prayers!
God be with you and make this time of memories very special.
We are praying and thinking of you all day long.
Lord,
please hold Cody in Your loving, tender hands. Let him be blessed with Your comfort. Let his family know that they are loved beyond measure.
In His name, I pray....
God bless you and your precious family. Parents shouldn't have to deal with this type of thing. Children should never have to live this nightmare. It's wrong. If you all need anything, please let it be known. Will be praying for sweet memories and peace in your lives.
I am over here from Abby's blog...
my heart goes out to you.
my prayers are with you.
sending positive thoughts your way.
may this time be filled with love and lots of quality time together memory making.
xo
Our family will pray that you are able to feel God's presence and that you will allow Him to hold you tight. I am heartbroken for all of you. Many, many prayers will be said.
Praying for your family!
May the Lord bless you and keep you as you make beautiful memories this weekend with Cody!
In His amazing grace,
Jill
praying comfort and peace for your family
Hi Diane and Mickey,
This is the first time we have visited your blog. We want you to know that our prayers for healing are with you. Although the doctors have offered you little hope, know that even in our darkest moments there is always hope. For hope became a man and died for this very reason... to bring, life... healing, comfort, peace and even deliverance of pain to Cody. Hope never decreases, it stays the same regardless of the circumstances.
"And hope maketh not ashamed: because the love of God is shed abroad in our hearts by the Holy Ghost which is given unto us." Romans 5:5
I know that it is ALWAYS God's perfect will to heal. It is true sometimes in His eternal wisdom the ultimate healing is to call us home to be with him. However make no mistake about it..God is still in the miracle healing business here on earth as well. God loves to be glorified
"And whatsoever ye shall ask in my name, that will I do, that the Father may be glorified in the Son. And in that day ye shall know that I am in my Father, and ye in me, and I in you." John 14:13,20
The more impossible it seems to the doctors the more glory God will receive. Just as the story of Lazarus teaches us..God is always on time...even when He's four days late...He's still on time. The Word tells us to fight the good fight of faith and that fight isn't over until the very instant God calls us home. As you enjoy your time as a family, continue to quote healing scriptures over Cody. For they are life,
"My Son, attend to my words; incline thine ear unto my sayings. Let them not depart from thine eyes; keep them in the midst of thine heart. For they are life unto those that find them, and Health to all their flesh. Keep thy heart with all diligence; for out of it are the issues of life." Proverbs 4:20-23
"So shall my word be that goeth forth out of my mouth; it shall not return unto me void, but it shall accomplish that which I please, and it shall prosper in the thing whereto I send it. " Isaiah 55:11
God's word shall not return to Him void..speak those healing scriptures.
"I create the fruit of the lips Peace, peace to him that is far off, and to him that is near, saith the Lord: and I WILL HEAL HIM." Isaiah 57:19
We will be praying for your entire family!
Love in Christ,
Dana Burk
Diane and Mickey, seeing how much your family loves each other is a real blessing. I won't stop praying
-Sante
Praying for you.
Continuing prayers for all of you for strength and peace and Wonderful memories.
I came across your blog though the Rigg's Family Blog. I am praying for your family and will continue to. I am so sorry.
Lord -- give them strength, give them wisdom and hold them close to You as they walk this path. Lord, Cody is your child and I know You love him. Lord, I'm boldly approaching the throne of grace and asking for Your healing touch on this precious child. Lord, I know that You are a God of Miracles and a God of great Wonders. Lord, I ask that Cody be healed. Lord, above all I ask that Your will be done in Cody's life and in his family's life.
In Your Name. Amen
Bless your hearts. Sending you love and prayers...
the Gilliam family in Michigan
I just found your blog today and know that my prayers are with you and your family!
My thoughts are with you and I pray for strength for your family and a miracle for you son.
Steve (RW Masters)
My prayers are with you and your sweet Cody.
thinking of you all. keeping you in thoughts and prayers. Feeling helpless in WV.
Love to all,
John and Cheryl
I came across your blog from the Riggs blog. My thoughts, prayers, hugs & love are with you. May God be with you in this time.
Thinking of you from San Diego... Your family is in my thoughts and prayers...
On my knees for Cody and your family.
praying for a miracle....
*~Michelle~*
Found your blog from the Riggs family blog. Praying that the God of all comfort may surround your family as you this heavy trial. As a mom, my heart breaks for you and words seem so inadequate. Praying for grace and strength that you may be able to make wonderful memories at the beach.
I too found your blog from the Riggs blog... please know I will be praying for you, for peace, comfort, and strength. I am so sorry you have to go through this. Lots of love and many prayers- Lindsey in CA
We will continue to pray for Cody and his spirit so that we may nourish it as much as it is earthly possible. That we may join in thousands here on earth to glorify God on behalf of one of His precious angels. Without Brett, I would never have 'got' why we do this.
We will hold your arms up when you just can't do it anymore.
What a beatiful child!!!
You have the support of friends, family and strangers. My thoughts are with your family. Enjoy the beach. It's where the best of my childhood memories lie.
I am so sorry...
Make the most of the beach trip and cherish every moment..I know you will...
Keeping your Cody and your family in my thoughts and prayers...
Hugs
Terri
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