What was suppose to be an uneventful weekend has started out in a bad way. Last night when going to bed Cody told Diane that his groin area hurt. It turns out that the gland on the right side of his groin is swollen pretty bad and is hurting him. Diane called the Dr. and I was getting ready to take him in to Georgetown. But, the doctor said we didn't need to come in unless he has a fever. If he has a fever it is possible that it's an infection. The fact that she has told us to enjoy the weekend and she will see us Monday speaks volumes. I spoke to her for a little while and asked her what she thought was going on and she believes it's the beast. We hope and pray that it isn't. I asked her if we are at the cross roads now and she believes we are. Cody's liver is not well, so we can't continue chemo. The half dose of chemo he had a few weeks ago appear to have no effect on the neuroblastoma. With the apparent progress of the beast in his lungs, bones, esophagus and groin the prognoses is not good. If Diane is up to it we will all go in to Georgetown on Monday. It appears that "the talk" is now inevitable.
Cody has been extremely irritable the past few days. We believe he is in pain and that is his way of expressing it. He just can't help it. I think we will be putting him on morphine soon.
Cody has been saving his money from the sale of candy to go to the beach. Most of you know that he has always loved the beach. It appears that we will be going soon. I think we will be heading South for the warm weather. I will be talking with the doctor about a gap in his radiation treatment to find a good time for the trip.
Diane is a wreck and I'm numb. This is a day that we have not wanted to come. It's the day when it all seems to smack you right in the face.
Please, please, please pray for Cody....
Corie, I will have the doctor get in touch with the Red Cross on Monday. Love you!
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38 comments:
Oh Mickey, I don't know what to say. I will continue to pray for Comfort
and strength for all of you.
I wish there was more that I cold do. Please let me know if you can think of anything.
Blessings, Kirk
Mickey and Diane,
Stay strong and contiue to pray. It's hard for me to write anthing, just know that I continue to pray and think of you guys everyday. Love You and give Cody a big hug and kiss.
Love, Your little Bro,
Alan
Mickey&Diane,
There just has to be a MIRACLE
some where for our BIG GUY. I
can't see it to be any other way.
We'll all keep on praying and
believe just that. I too thought
you were all going to have a great
weekend.GOD BLESS YOU ALL. Give the
big guy another BEAR HUG FOR ME..
LOVE, MOM
This was so hard to read. I don't know what to say, either.
Prayers are continuing,
Dottie
Prayers for the entire family.
Mickey and family: so sorry to read this...I don't know what to say other than that every STEP of my marathon tomorrow will be in Cody's name, hoping that his pain is lessened and that you are all alright.
kate (feetdon'tfailmenow)
Dad,
I will get the ball rolling on the Red Cross message, that way it doesn't take a week for me to get it and all the doctor has to do is sign off on it. I anticipate being home by next Saturday and will be bringing the kids over as soon as I get home.
I will continue to pray.
I love you.
Corie
I am so sorry! I don't know what to say. I am at a loss for words but not a loss for prayer. I will prayer for the miracle that your mom refers too. I will pray for peace and comfort for Cody. I will pray for your continued strength and that his liver improves so he can receive the treatment he needs. Please lean on us! We are here.
Prayers Mickey. Keep up the good fight!
Hey Bro,
I too am numb, pissed off and praying!!! You guys are in my every waking and sleeping thoughts. Let me know if there is anything, anything I can do!!
Love ya
More thoughts and prayers for Cody and his family.
MangoAK
Prayers, every day, for all of you. Mickey, I love the picture of Cody on the beach.
Tamara (Runlonger)
Mickey, I read your post last night, and tried and tried to come up with the right words to say, and just couldn't find them. I still don't have the words in mind - just know that I have you and Diane and Cody, Justin, and Daniela all in my prayers.
Prayers for peace, and strength, and healing.
ElizabethNYC
Mickey,
My soul cries for all of you. I will continue to pray for Cody. Stay strong as you always have.
DollarBill
Mickey, I read this yesterday but didn't have the words to express how I was feeling and today I find that I still don't. Cody and your entire family have had to experience something that no family should have to endure and have shown unimaginable courage and strength through it all. I know that I am just one of so many that believe that somehow he is going to get through this latest setback, he is teh strongest kid I have ever met. I like so many others will continue to pray for Cody and the entire Johnson family to get through this.
Dan
Anonymous said
Mickey & Diane & family,
Dave & I are praying for each & every one of you. You are in our thoughts all the time. God will give you the strength that you need to carry you through. There are no word to say but God bless you and keep you all in his loving arms
Mickey and Diane,
Just know that I am always thinking of you guys and praying....
Cody, I've personally seen you work miracles before, stay strong buddy, love you!
Kelly
I don't have any words, just sending lots of prayers.
Sam
Mickey, My continued prayers of strength and healing! The one prayer that kept coming back to me yesterday during the marathon was that the Lord will be with you and that you will know that you are not going through this alone. Rely on the the strength of the Lord to help you through.
God Bless,
Bruce
I'm so sorry Mick, but I will pray that the test turns out to not be the beast, but something more benign.
Prayers and blessings to you all.
monica
I found your blog through a coworker of yours. My 4 year old daughter has cancer also. I am so sorry your son is sick and that you are hurting. I will be praying for you all.
I will post a link on our blog. Please let me know if you would like for me to remove it. Normally I ask before I place a link, but your needs are urgent and your time is precious.
Love and tears, Michelle
riggsfamilyblog.com
I am still praying for that miracle to happen for you. I am still believe in the power of hope and prayer. I still believe that anything can and will happen.
I am praying for God to grant that miracle to Cody.
I am your friend and am here for you always in any way needed.
God Bless you and your family
Karen
Mickey and Diane,
My wife Jen, and I, met your beautiful family last summer at our beach vacation with Believe in Tomorrow. We have been following your blog since. We are so sorry for all that's going on. Please know we are praying for you all.
Dave Brewer
Mickey, Diane and Family, We're so sorry to hear this latest news, but are keeping our thoughts and prayers for Cody bigtime. We send our love and prayers.
Lydia, Bob, Sarah and Noah (California)
Ohio will be praying for Cody. I hope that you can get a break to get much needed time to be away and let your son be a "kid".
Mickey and Diane,
We are still praying. I am at a loss for words and continually hope beyond all the odds. Love and God's peace and His joy be with you all. Love, BigSis
Diane and Mickey,
your writing says it all. It is the day we play over and over in our heads but never imagine really walking into that day. We are inpatient still if you want a hug I'm all arms. Holding on to every post you make... Caryn and Nick
www.caringbridge.org/visit/francafamily
We are praying for Cody and the family, stay strong we love you all. the Jacksons
Mickey,
I feel helpless and really wish there was something I could do to help relieve some of the pain that you and your family are dealing with. Like Cody, I too find peace at the beach and will spend some time there today in honor of Cody.
God bless you and your family. If you need anything or just want to talk you can find my number on the main page of my blog.
Take care of yourself buddy.
Ron
No words to say just prayers, prayers, prayers coming to your family. Pam
Prayers from Colorado.
MDCN
Prayers to you all. Keep the faith.
Mickey and Diane, this is all so unfair. Numb and pissed-off are a good way to describe the way I feel after having read this. Prayers of comfort and strength.
Susan and Jonathan
DeckApe,
Been praying over here even though I haven't checked in here in quite sometime...sorry...words just can't do this situation justice. I'll keep praying!
Gregory (Pudov)
Mickey&Diane,
We know these are difficult times for you and your family. Whether there in VA or here in CO, many prayers and thoughts for your family and Cody. I can't even imiagine how/what you feel. But the love of God is real. His strength, word, and wisdom will bring you through this.
Please do not hesitate to call for an ear to listen or a shoulder for comfront. We love you and take care.
Eric, Kia, Nyera, Peanut
we continue to keep all of you in our thoughts and prayers. There are no words to express what we are feeling. Just know that we are here and if you need anything just call.
love ya,
john and cheryl
I have started a prayer chain for cody and family at my new office. Prayers are coming from wv. we feel for your family. Feeling helpless in wv.
love,
john and cheryl
Johnson Family,
Diane this is Tina (from the Mall). I have not been in touch with anyone so I was unaware of how things have changed with Cody. When I was in touch with Janice more I would ask every once in a while and the news had been promising. I work with someone who has been involved in fund raising for Cody and she told me about the blog site. I won't even try to express how I feel because compared to what you all are feeling it doesn't even matter. I will continue to check the blog and keep you all in my prayers. :)
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