Cody has done so well this week. His strength continues to amaze me. Justin has really done well also. He goes in with Cody and they play video games and board games while Cody is getting his chemo. He has been very patient with Cody this week. I will take Cody in tomorrow to the main floor to get his final round. The clinic isn't open on Saturdays or Sundays.
I'd like to quote my friend Jim from ACCA. "Please call, write to your senators & tell them to support the "Caroline Pryce Walker Conquer Childhood Cancer Act of 2008" which already passed the House. Senate is expected to vote on this bill shortly. Sorry I don't have the bill number. It would authorize $30 million a year over 5 years providing funding for pediatric cancer clinical trials, create a national childhood cancer database , and improve public awareness and communication regarding available treatments & research for children with cancer. This would be a big help & is specific to children. Please support this legislation. Another good organization in the fight is CureSearch.org whose mission is to cure childhood cancer."
There is also neuroblastoma specific language included in the "FY09 NIH funding bill" legislation rounding Capital Hill right now. This is a segment taken from that bill. "NEUROBLASTOMA- The Committee encourages NCI to accelerate support for neuroblastoma research, with a focus on clinical trials for high-risk patients. Given the poor survival rate for children with advanced disease, the committee encourages NCI to prioritize support for all promising neuroblastoma research both intramural and extramural." This is very encouraging! Please, please, please take a moment to call or write your Senator and Representative. Almost all of them have web sites and phone numbers so what is stopping you?
I'll be working on that tree again this weekend. It is kind of like my personal test. It's kinda like a marathon. At first glance you think, "there is no way I can do this." But, when you keep going at your own pace, the next thing you know, you have made some progress. The next thing you know, you're done.
And as far as the putt-putt game goes, Cody lets me get one shot on each hole. If I don't get a hole-in-one he finishes that hole for me. :) I owe Daniela a game and some ice cream because there was some miscommunication the other day. I thought that she was out with her friend having ice cream and that was not the case.