Just when it seems like we can take a breath we get a slap of reality again. Diane took Cody in yesterday to the clinic and do a chest CT to complete all the scans needed for MSK in New York. Well they noticed a new spot on his lung. We are hoping it is a lung infection but there is a possibility that it is a fungus, or worse. They took cultures yesterday and should know today or tomorrow if it is a fungus. If it is, there is a problem of whether Cody's liver is strong enough for the meds that are needed to fight the fungus. If it is worse, well, I don't even want to go there.
Cody had a very bad day yesterday. Diane told me he had major meltdowns all day. He also had one when it was time to go to bed. Diane and I both are at whits end with these outbursts.
He is still on for his surgery tomorrow. We hope to get some good news by then also. I will keep you all posted....
Be an angel, help find a company that can help Corporate Angel get flights out of the Washington DC area to the New York area. They only offer empty seats to cancer patients and their parents.