Stress...

Yesterday was a fairly slow day at the Johnson house. Cody slept in until 11 which is understandable after weeks of getting up early for his trips to Georgetown for radiation treatments. He continues to amaze us with his energy and spunk.
While watching him play I just can't help but tell myself that he just wants to be a kid. Take away the meds, the tubes, the needles, the trips to the hospital and give him school, his friends and the chance to just be a kid.

99.5 percent of the time Cody is an extremely loving and caring child. He is an angel... But,,, for the 5th day in a row he has been triggered into a rage that cannot be stopped. It gets so bad that I have to physically restrain him so he does not hurt himself or others. He screams at the top of his lungs. He starts destroying his toys or anything he can get his hands on. Lamps, glassware or any breakable items are not safe. He has no problem hitting his siblings, Diane or myself. This can all be set off by something as little as being told to settle down or not winning a video game. This session usually lasts from an half to 2 hours. After he settles down he usually comes and apologizes to Diane and I. This causes such stress around the house. His sister Daniela is usually brought to tears because she thinks I am hurting Cody or just doesn't understand what is going on.
Cody was going through this same thing while in the hospital during chemo treatments. When given certain drugs for pain or just side effect prevention he would occasionally have these. We have talked with the doctor about this and it was decided that we would wait until he is off many of the other meds before trying to deal this issue. I totally understand why my son is going through this. Hell,,, I would probably do the same thing if I were going through what he has. I wish I could take all of this away from him. He really never complains about all he goes through but in the back of his mind he has to be asking himself "why?"...


"Bound by Hope"