Well we got to meet Dr. Modack and the MSK team yesterday. The pediatric floor is very nice and big. They have many things to keep the kids busy while up here. You can tell this place is very well respected. People from all over the world bring their children here for treatment. People who have been told that there is nothing that can be done for their children by the hospitals in their own countries. We met a very nice guy from South Africa who is here with his son. They stay here for months at a time.
Dr. Modack seems like a very sharp guy to me. I think it is going to take Diane a while to get use to him. You see, we are use to dealing with women doctors who have a much different way of delivering information to people. I don't want to say they sugar coat things but they are more reassuring when discussing treatments and possible outcomes. I think Dr. Modack will have to get use to dealing with Diane also. I'm still not use to it.. :D
We discussed a few options that we have but I'm not going to get into that yet. It seems like the more I learn, the more I don't know. Cody is scheduled to get his nuclear injection today. Then, tomorrow will be a very busy day. He will have a MIBG, MRI and 4 point bone marrow. He will need to be sedated for all 3 of them. We will not know much until next week I'm sure. I learned a couple of days ago that Cody's surgery at Georgetown is not a done deal yet. We are going to wait until the surgeon up here looks at the scans and test and both Dr. Modack and Dr. Abu-Gosh talk with the surgeons and decide what is best for Cody.
I got a few great pictures yesterday and last night. We went to Time Square show Cody the lights and to walk around. Although it was pretty cold we still managed to get around a little. We will be going to see Lion King on Broadway tonight. A good friend of ours at Georgetown lined up some tickets for us.
That's about it for now...
Thanks to Liz and my other NY running friends for all the great info. I did manage to find a great deli yesterday. I bought two large coffees and two bagels with cream cheese for 5 dollars. :D
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11 comments:
Glad to hear y'all are settling in. Good luck with all the tests. Will continue to pray.
I am happy to hear that you guys are settling in and will have a chance to see the city. You guys are going to LOVE the Lion King. It is an amazing show from the set to the costumes to the talent and story line! Soak it up and enjoy! My thoughts and prayers will be with you and Cody as Cody undergoes all these tests and procedures. Thinking of you,
Lori
Glad to finaly hear something from
you today, but I,m like you, the more you tell me, the more I don,t
know.Please keep telling me as much
as you can and I,ll try to keep up.
I,m glad to hear there are a lot of
different things to do to keep our
big guy busy and you 2 thinking of
other things other than surgery but
of course that is always there. We
are always here too, you can bet on
that...Love you all so very much..
I'll check in later. Kiss & hug the
BIG GUY for all of us.
LOVE & KISSES,
MOM
Glad you're getting to find your way around the big city. Pray all goes well with the next round of procedures for Cody.
Shirley
Cody, aren't the lights something at Time Square - it's like day light it is so bright!!
I know you are going to love Lion King tonight - the music is great -I can see you dancing to it.
I'll be sending you lots of positive thoughts and strength tomorrow.
Hugs to Cody, Pat (ACCA-NCC)
A cheap deli AND the LION KING !! SCORE !! Hope Cody likes the show. It's a good evening prior to all the testing tomorrow.
Each physician has a different bedside manner. Some of the best have the worst !! You are in good hands at MSK. Positive thoughts and prayers continue. G2G
I am sure it is never easy to get a relationship with a new doctor. It will take some time. I hope that you have a good time tonight. Enjoy it before you have to go back to the hospital tomorrow for tests. Praying that it all goes smoothly tomorrow. Praying for strength.
Susan and Jonathan
Hey Deck,
Glad you got to the Big Apple and getting all set for the next round of treatments for Cody. Loved the pics of your family a few posts earlier and will keep the prayers coming from this side of the world!
Gregory (Pudov)
Wow! That coffee and bagel would be a bargain here, too!
Sounds like you'll get to see some of the Big Apple while you are there. Hang tough and we'll keep the prayers coming.
Dottie
I am praying that all goes well for Cody...what a big week. Lots going on.
Enjoy the Lion King...that will be fun!
As always your family is in my thoughts.
Karen
Hope everything is going well today!
Prayers continue,
ElizabethNYC
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