Like the old saying goes, "we enjoyed it while it lasted." I went to work yesterday and was able to get something done. You know how it is when there aren't that many people in the office and less distractions. Diane took Cody in for blood and platelets. We know he would be getting both so a long day was in store. So they finally get home about 8:30 pm and he was very grumpy and tired as was Diane. He had his dressing changed to top off the day and that is not one of his favorite things. Diane said he kicked and slapped her multiple times yesterday. He is just so tired of being touched and poked. When they got home he came and sat with me at my computer. We played "Sid Meyer's Pirates". That is his favorite PC game. I noticed while holding him that his head felt warm. For those of you who are parents you know what it's like to constantly smell and kiss your child's head? It's hard to explain. Well anyway it's easy to tell when they are hot especially when they have no hair. :( So I asked Diane to take his temperature and to no surprise it read 38 C. I know, "what is that in English please" you say? 38 C is equal to 100 degrees F. That is the magic number for Cody when he is at this stage of chemo treatment. So at 12:00 midnight we headed back to Georgetown.
They had our room ready for us when we arrived. We know almost all the staff here on C53. The nurses and doctors know Cody very well. He is such a tough character that they all try very hard to get on his good side. But, even when on that "good side" you have to respect when he doesn't want to be bothered. He makes it very clear when he is not in the mood to be messed with.
To top it all off, Daniela has been complaining that her throat was hurting for that last couple days. She hasn't had a fever but we have been very careful to keep her away from Cody. Before Diane got home yesterday I called and made an appointment for her at our pediatrician. The appointment was for 8 am because I thought that it would be me taking her and I wanted to be home quickly so Diane could go to work. Now she has to take her and I haven't heard from her yet.
Well, as I said in the title, "we did enjoyed it while it lasted." We got almost 7 days at home after the last chemo which is quite remarkable. Hopefully his high temp goes away and we can get home soon. We know a trip to New York is in our future very soon. Unfortunately it's not for pleasure.