Cody and I had a good day together at home. He is still not eating but he is in pretty good spirits. He and Diane will be making the trip into Georgetown today. We fully expect it to be a long day for them. He will at least need platelets. No news on what is next for the little man. In 3 weeks or so he will get scans again to re-evaluate the size of his tumor. Then we will go from there.
Last night before bed Diane and I had to change the dressing on his lumen. I have to say, "that was the smoothest it has ever went." He was calm and didn't fight us at all. Unfortunately the dressing has to be changed once a week in order to keep it dry and clean. Basically it's just a piece of clear tape that covers the opening where the tube comes out of his chest. If moisture or dirt gets in or around that area we would have big problems. So much so that he would have to have the tube replaced which would take surgery.
I will post this evening to update everyone on the day. Once again I would like to thank all of you for stopping by. It means an awful lot to Diane and I that so many of you care and are praying for Cody and our family. We feel like we are not going through this alone.